World Congress

Every three years, SBA convenes an international symposium designed to bring together health care professionals and researchers in the field of Spina Bifida. This innovative meeting, called the World Congress on Spina Bifida Research and Care, serves as the premier forum to bring together the range of medical disciplines which serve this complex birth defect.

Second World Congress
The Second World Congress was held in March 2012 in Las Vegas, Nevada. In addition to a wide-range of work presented during the meeting, international health care providers examined Spina Bifida and its relationship to disparate health groups around the world. Results from the first phase of the groundbreaking National Institutes of Health funded study the Management of Myelomeningocele (MOMS) were also presented.

For more information on these and other research outcomes, please visit

First World Congress
The First World Congress  convened in March 2009. Medical and other healthcare professionals took the next steps in developing and translating research to improve our system of healthcare for those living with Spina Bifida. Among many other research findings released, one of the most potentially impactful findings presented during the three-day Congress was a revised figure on the number of Americans living with one of the various forms of Spina Bifida to more than double the previous estimates.

For more information on this and other research outcomes, please visit