October 2012: National Spina Bifida Awareness Month Brings Celebration and Attention to Cause
October is National Spina Bifida Awareness Month, a time to educate the public and to shine a light on the birth defect and its related conditions while celebrating the lives of the more than 166,000 Americans affected. Unlocking the mysteries to proper treatment and care of this condition remains an important goal for the Spina Bifida community.
Throughout the month of October, the Spina Bifida Association (SBA) works with its Chapters and the Spina Bifida clinic network to raise awareness and visibility of Spina Bifida. Thousands across the country take part in events for the Walk-N-Roll® for Spina Bifida and Team Spina Bifida that are being held throughout the month. For a full list of events and locations, please click here for more info.
SBA’s social media followers will be joining together to partake in the Celebrate SB campaign. With messaging about the “truths” about Spina Bifida and positive images about what living with it really means, the goal is for the campaign to go “viral” throughout the month.
“Our nearly 48,000 social media followers have joined us to build an extremely supportive, positive, and educational environment via our various networks. Now we hope to empower them to use these same tools to truly celebrate Spina Bifida this month and share the facts, messages, and visuals with their own networks. Together we can make a difference by increasing the understanding of Spina Bifida,” remarked Cindy Brownstein, SBA’s President and CEO.
SBA is also celebrating Awareness Month by releasing its biennial research edition of Insights into Spina Bifida, SBA’s national magazine. The issue highlights research presented during SBA’s international symposium, the World Congress on Spina Bifida Research and Care, which was held earlier this year. In addition, the issue highlights the National Birth Defects Prevention Study (NBSPS) being led by the Centers for Disease Control and Prevention. In just the last two years alone, 57 research papers were published using data from the NBSPS. Subscriptions to Insights are available online .