If you know of resources, please email firstname.lastname@example.org.
- A planned or unplanned pregnancy brings you to your local healthcare
provider for care. You have undergone a routine ultrasound and have been
politely asked to wait for the doctor. Your doctor has the daunting task
of telling you that there is a problem with the baby. A sea of emotion
takes over for some, others become frozen and numb. The doctor describes
statistics and potential risks and outcomes. You may be referred to a
genetics counselor for follow-up.
- Couples may be faced with decisions regarding termination of the
pregnancy or to continue with a high risk pregnancy. Many call upon family
and friends for support. A spiritual advisor may be helpful during this
stressful time. Some couples become withdrawn and need time to comprehend
what is happening.
- Many adults living with Spina Bifida go on to have children of their
The Disabled Woman’s Guide to Pregnancy and Birth, by Judith
Rogers, OTR, ACCE
FAQs about Spina Bifida
Family Planning and Prenatal Care for Adults with Spina
SBA Real Stories
SB Parents ListServ
Organizations that Can Help
Spina Bifida Association Chapters
Please Note: These resources and information are
reviewed periodically. They do not represent all of the resources currently
available on a topic. If any updates are needed or if you would like to
recommend a resource, please email the Resource Center at email@example.com.