Prenatal Issues

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  • A planned or unplanned pregnancy brings you to your local healthcare provider for care. You have undergone a routine ultrasound and have been politely asked to wait for the doctor. Your doctor has the daunting task of telling you that there is a problem with the baby. A sea of emotion takes over for some, others become frozen and numb. The doctor describes statistics and potential risks and outcomes. You may be referred to a genetics counselor for follow-up.
  • Couples may be faced with decisions regarding termination of the pregnancy or to continue with a high risk pregnancy. Many call upon family and friends for support. A spiritual advisor may be helpful during this stressful time. Some couples become withdrawn and need time to comprehend what is happening.
  • Many adults living with Spina Bifida go on to have children of their own.

Recommended Readings:

The Disabled Woman’s Guide to Pregnancy and Birth, by Judith Rogers, OTR, ACCE

FAQs about Spina Bifida

Family Planning and Prenatal Care for Adults with Spina Bifida

Genetics and Spina Bifida

MOMS Study

SBA Real Stories

SB Parents ListServ

Organizations that Can Help

Spina Bifida Association Chapters

International Association of Parents and Professionals for Safe Alternatives in Childbirth
RR 4
Box 646
Marble Hill, MO 63764

Lamaze International
2025 M Street, NW, Suite 800
Washington, DC 20036-3309

International Childbirth Education Association
PO Box 20048
Minneapolis, MN 55420

DONA International
PO Box 626
Jasper, IN 47547
888-788-DONA (3662)

Please Note: These resources and information are reviewed periodically. They do not represent all of the resources currently available on a topic. If any updates are needed or if you would like to recommend a resource, please email the Resource Center at