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Spina Bifida
FAQ About Spina Bifida
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Pregnancy in SB
July 2009: Are people with Spina Bifida Occulta at an increased risk of osteoporosis?
Folate for Woman Related to Child with SB
Delivery of baby for women with SB
Adult tethered cord release and recurrance
May 2009: Is there a genetic blood test yet that predicts a neural tube defect?
Is there a genetic blood test yet that predicts a neural tube defect?
Can a person with Spina Bifida father a child?
When do I let my child with Spina Bifida catheterize?
I want to develop a sexual relationship with my partner but I am afraid of losing control of my bowel and bladder
I am an adult with Spina Bifida that would like to have eye surgery
I am 18 years old and need to find a doctor
I have a question regarding sex and Spina Bifida
I am a college student with Spina Bifida. My home is Indiana , but I go to school in New York.
I am a parent of a child with Spina Bifida.
Can I go scuba diving with a ventricular shunt
I find it hard as a wheelchair user
SB and shunts have heightened hearing sensitivity
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SBA eNewsletters
October 2008: SBA Leaders Visit Capitol Hill
July 2008: Let’s Get Physical
July 2008: Medicare Changes Reimbursement Policy on Intermittent Catheterization
July 2008: The Spina Bifida Community’s Goodwill Ambassadors
July 2008: Tatiana Goes for the Gold
July 2008: John Page Plans Expedition for Spina Bifida Awareness
July 2008: SBA Wraps Up the 35th National Conference
October 2008: Paralympics and Olympics Wrap-up
October 2008: Reaching for PossibilitiesTeaching Optimism, Emotional Resilience and Hope in Recovery and Rehabilitation
October 2008: October Is Spina Bifida Awareness Month
October 2008: Expanding Civil Rights for the Disabled
News
October 3, 2007 Folic Acid Mandate Foils Birth Defects
Finding reasons to be thankful
May 7, 2009 - SBA Professional Advisory Council Issues Statement about Swine Flu and Spina Bifida
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The SBA National Office can be reached at 800-621-3141.
Name (Ext.)
Title
Email
Sherry Arvin (ext. 35)
Information and Referral Coordinator
sarvin@sbaa.org
Robin Austin (ext. 29)
Communications Specialist
raustin@sbaa.org
Cindy Brownstein (ext. 14)
Chief Executive Officer
cbrownstein@sbaa.org
Anna Clift (ext. 21)
Database Coordinator
aclift@sbaa.org
Tanya Coogan (ext. 23)
Director of Chapter Development
tcoogan@sbaa.org
Amanda Darnley
(ext. 15)
Director of Communications and Marketing
adarnley@sbaa.org
Melanie Gaylord (ext. 17)
Administrative Coordinator/Office Manager
mgaylord@sbaa.org
Adriane Griffen (ext. 13)
Director of Health Promotion and Partnerships
agriffen@sbaa.org
Joseph Martin (ext. 24)
Controller
jmartin@sbaa.org
Christian Rougeau (ext. 22)
Web Initiatives and Development Manager
crougeau@sbaa.org
Sara Struwe (ext. 12)
Chief Operating Officer
sstruwe@sbaa.org
Christopher Vance
(ext. 11)
Director of Development
cvance@sbaa.org