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Spina Bifida
FAQ About Spina Bifida
Living With Spina Bifida
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Pregnancy in SB
July 2009: Are people with Spina Bifida Occulta at an increased risk of osteoporosis?
Folate for Woman Related to Child with SB
Delivery of baby for women with SB
Adult tethered cord release and recurrance
May 2009: Is there a genetic blood test yet that predicts a neural tube defect?
Is there a genetic blood test yet that predicts a neural tube defect?
Can a person with Spina Bifida father a child?
When do I let my child with Spina Bifida catheterize?
I want to develop a sexual relationship with my partner but I am afraid of losing control of my bowel and bladder
I am an adult with Spina Bifida that would like to have eye surgery
I am 18 years old and need to find a doctor
I have a question regarding sex and Spina Bifida
I am a college student with Spina Bifida. My home is Indiana , but I go to school in New York.
I am a parent of a child with Spina Bifida.
Can I go scuba diving with a ventricular shunt
I find it hard as a wheelchair user
SB and shunts have heightened hearing sensitivity
August 2009: I now have a colostomy and am in my chair full time. What should I do?
September 2009: My husband and I are using donor sperm for artificial insemination
I have a question regarding sex and Spina Bifida. My girlfriend has Spina Bifida
I have a 3 ½-month old granddaughter who had a dimple at the base of her spine
October 2009: I am a 21-year old-woman with Spina Bifida and just got married.
December 2009
January 2010
Quality Of Life
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Print PSAs
B Healthy Recipes - Spring 2009
B Healthy Recipes - Winter 2009
B Healthy Recipes - Summer 2008
B Healthy Recipes - Fall 2008
B Healthy Recipes - Fall 2009
How To Help
Advocacy & Public Policy Priorities
Legislative Action Center
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Events
National Conference
First World Congress
Annual Roast For Spina Bifida
Night of 100 Parties
Media Center
Insights
SBA eNewsletters
October 2008: SBA Leaders Visit Capitol Hill
July 2008: Let’s Get Physical
July 2008: Medicare Changes Reimbursement Policy on Intermittent Catheterization
July 2008: The Spina Bifida Community’s Goodwill Ambassadors
July 2008: Tatiana Goes for the Gold
July 2008: John Page Plans Expedition for Spina Bifida Awareness
July 2008: SBA Wraps Up the 35th National Conference
October 2008: Paralympics and Olympics Wrap-up
October 2008: Reaching for PossibilitiesTeaching Optimism, Emotional Resilience and Hope in Recovery and Rehabilitation
October 2008: October Is Spina Bifida Awareness Month
October 2008: Expanding Civil Rights for the Disabled
July 2009: SBA Prevention Program – Get Involved
July 2009: Are Individuals with Special Needs Ready for Emergencies?
July 2009: A Boy Scouts of America Journey for a Mother and Son
July 2009: 36th National Conference Concludes
July 2009: What You Need to Know about Latex Allergies
April 2008 eInsights: “B” Healthy Recipes for You and Your Health
April 2008 eInsights: National Spina Bifida Program
April 2008 eInsights: National Survey of the Spina Bifida Community
April 2008 eInsights: Online Communities Provide Valuable Connections
April 2008 eInsights: Talking Teens and Young Adults Blazing a New Path
October 2009: CDC Issues Updated Vaccination Recommendations for Swine Flu
October 2009: Latex Free Toys
October 2009: Night of 100 Parties
October 2009: National Spina Bifida Patient Registry
October 2009: Walk-N-Roll for Spina Bifida
January 2010: NCFA and SBA Take to the Airwaves-and Net-to Celebrate Folic Acid Awareness Week
January 2010: Eliminating Barriers to Accessibility Is a Team Effort
January 2010: A Win for Spina Bifida, Patients, Families and Advocates
January 2010: Haiti's Devastating Earthquake
January 2010: Important Information about Seasonal Flu from the CDC
News
October 3, 2007 Folic Acid Mandate Foils Birth Defects
Finding reasons to be thankful
May 7, 2009 - SBA Professional Advisory Council Issues Statement about Swine Flu and Spina Bifida
August 18, 2009: CDC Issues Updated Vaccination Recommendations
September 14, 2009: Mary Jo Dunleavy, Long-time Spina Bifida Champion, Passes Away
August 19, 2009: SBA Mourns Loss of Two Media Giants and Spina Bifida Supporters
SBA and SBF Announce 2010 Research Funding
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The SBA National Office can be reached at 800-621-3141.
Name (Ext.)
Title
Email
TBD (ext. 35)
Information and Referral Coordinator
sbaa@sbaa.org
Robin Austin (ext. 29)
Communications Specialist
raustin@sbaa.org
Glenrae Brown (ext. 19)
Staff Accountant
gbrown@sbaa.org
Cindy Brownstein (ext. 14)
Chief Executive Officer
cbrownstein@sbaa.org
Tanya Coogan (ext. 23)
Director of Chapter Development
tcoogan@sbaa.org
Amanda Darnley
(ext. 15)
Director of Communications and Marketing
adarnley@sbaa.org
Mike Emery (ext. 21)
Database Coordinator
memery@sbaa.org
Mike Garaffa (ext. 22)
Web Initiatives and Development Manager
mgaraffa@sbaa.org
Melanie Gaylord (ext. 17)
Administrative Coordinator/Office Manager
mgaylord@sbaa.org
Joseph Martin (ext. 24)
Controller
jmartin@sbaa.org
Sara Struwe (ext. 12)
Chief Operating Officer
sstruwe@sbaa.org
Christopher Vance
(ext. 11)
Director of Development
cvance@sbaa.org