Programs and Services

SBA’s mission is two-folded. In addition to enhancing the lives of those affected by Spina Bifida, the organization also strives to reach all women of childbearing age with its prevention messages. All SBA programs and services are created and developed based on industry innovation and research with our audiences.

The Quality of Life programs and services aim to increase awareness and knowledge of Spina Bifida, positively impact independence of people with Spina Bifida, and empower the Spina Bifida Community of children and adults living with Spina Bifida, families, caregivers, and professionals.

SBA Prevention programs and services aim to increase knowledge about ways to reduce the risk of Spina Bifida. Because there is no known cause of Spina Bifida, it is essential that these prevention messages touch the lives of all of the 65 million women of childbearing age.

SBA also runs an Awareness campaign throughout the year to increase the public’s understanding of Spina Bifida. While the campaign is ongoing, the main focus is the time between Mother’s Day and Father’s Day and October which is Spina Bifida Awareness Month.

The SBA National Resource Center is the information foundation behind all SBA programs and services. It is the only national clearing house of information exclusively dedicated to Spina Bifida.


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