Lives are changed by the programs and services SBA has created to respond to the needs of new parents of babies who are born with Spina Bifida, families who are dealing with the challenges of Spina Bifida, teens who are transitioning toward newfound independence, and adults who are leading productive and fulfilling lives.
Current SBA quality of life programs and services include:
- eCommunities: ListServs supporting an ever growing online community. Topics include SB Parents,
SBProfessionals, and SB Occulta.
- Scholarship Fund: With the assistance of donors who recognize the value of education, SBA has a scholarship program for people who have Spina Bifida.
- National Conference: A yearly gathering of the Spina Bifida community.
- Kids!Camp: The only national camp specifically designed for children with Spina Bifida and their siblings.
- SB University (SBU): An online educational resource featuring live and taped sessions on topics important to the Spina Bifida Community.
- Preparations: An interactive online resource which allows parents, health care providers, and individuals with Spina Bifida to evaluate progress against developmental milestones to help ensure a successful transition from childhood to adulthood. Based on responses, tips and resources are provided to aid in this journey.
- SB Tweens2Teens: A unique online community tackling sensitive issues and topics for tweens and teens with Spina Bifida.
