Spina Bifida Association Public Policy Priorities

• 2009 Public Policy Agenda
• 2008 Public Policy Agenda
• 2007 Public Policy Agenda
• 2006 Public Policy Agenda

Spina Bifida Association Issue Briefs

• 2010 Dietary Guidelines Advisory Committee Written Comments
• The National Spina Bifida Program
• National Spina Bifida Patient Registry
• Spina Bifida Clinics
• Status of Folic Acid Fortification in the U.S.
• Spina Bifida Clinics Map

Spina Bifida Association Testimony/Correspondence to Congress

• 111^th Congress, 1^st Session
  • April 29, 2009: Written Testimony Regarding FY 2010 Funding for NSBP

• 110^th Congress, 1^st Session
  • March 30, 2007: Written Testimony from the Spina Bifida Association to the House LHHS
  • January 29, 2007: Spina Bifida Association Letter to the House LHHS Requesting to Testify for FY 2008 Funding

Congressional Action/Congressional Record Statements on Spina Bifida

•  October, 2009: Rep. Quigley Recognizes Spina Bifida Awareness Month (PDF)

•  October, 2007: Rep. Smith recognizes National Spina Bifida Month (PDF)
  
  
• October, 2007: Spina Bifida mentioned during Labor, Health, and Human Services Debate (PDF)
  
  
• July, 2007: Senator Sherrod Brown of Ohio honored the memory of Hal Pote on the Senate floor(PDF)
  
  
• 110^th Congress, 1^st Session
  • January 27, 2007: Statement from Rep. Bart Stupak, D-MI (PDF)

Congressional Spina Bifida Caucus
Caucuses are formally organized and recognized entities formed by Members to direct focus and attention to specific issues. Separate and distinct from congressional committees, caucuses are neither restricted in membership nor tied to the political makeup in the Congress so any member can join.

On May 15, 2003, Congressman Chris Smith (R-NJ), along with his colleague and SBA Champion Congressman Bart Stupak (D-MI), announced the formation of the Spina Bifida Caucus.

• 2009 Congressional Spina Bifida Caucus Roster

Support SBA’s advocacy efforts
please take a few moments and urge your Representative to join the Congressional Spina Bifida Caucus.