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SPINAbilities: A Young Person's Guide to Spina Bifida

There are many resources available which tackle the unique challenges that children and adults with Spina Bifida face however, the same can not be said for resources available to young people. SPINAbilities is a publication that was developed to help bridge this information gap and provide answers to teens and young people.

SPINAbilities provides practical tips for becoming independent and managing health care with humor and sensitivity. It's an easy-to-read (and hard to put down) book with clever illustrations that covers important topics like mobility and equipment; managing skin, bowel and bladder care; staying healthy and fit; self-esteem and body image; relationships with parents and siblings; friendships and romantic relationships; dealing with insensitive and rude people; improving academic performance and career skills.

SPINAbilities is available for sale through the SBA National Resource Center.

SBA has also made some of the best parts of this book and its great information available online. Fun quizzes and helpful checklists are also provided to supplement the helpful tips. Subject menus in each section will help to find specific topics of interest.

  • The Getting Started section features a fun quiz to find out how much you know.

  • Visit the Your Body and Health Section for health information about Spina Bifida and teenagers. These helpful tips help to better explain Spina Bifida to others while potentially learning new information yourself!

  • In the Family, Friends, and School section, read up on tips for getting along with family, making friends, dating, and doing well in school.