| Date |
Title |
| July 2010 |
My son was born with Spina Bifida with tethered cord. He had no symptoms except for the dimple on his back. His first MRI was done at the age of 8 months and he was operated at the age of 10 months. He is 8 years old now and his physical parameters are fine. He is a very good sportsman and has been doing very rigorous skating. However, he has not gained 100 % control over his bladder and rectum. I am not sure it is because of some medical problem, or if he is too lazy to go to the toilet. If he is reminded, he does not wet his pants, and he does go to the toilet on his own. Only once in two months or so he passes motion in his pants in school. His Urodynamic study has been done and there seems to be no abnormality detected. His MRI was repeated last year and the MRI shows tethered cord again. His sports performance seems to be getting better and there seems to be no deterioration in his bladder and rectum situation. Kindly advise if we need to go for surgery or what next for us. |
| June 2010 |
I have a question about Spina Bifida that may not have a well-researched answer. I’ve read that the mother of a child with Spina Bifida has an increased risk of having another child with Spina Bifida, but is there any paternal link? If the father of a child with Spina Bifida remarries and his new wife becomes pregnant, is there any increased risk of Spina Bifida for her child? |
| May 2010 |
Are there specific precautions to having a VP shunt such as avoid rolling or hanging upside down or putting pressure on the location of the shunt? |
| April 2010 |
Is Alopecia common in people with Spina Bifida, specifically Myelomeningocele? |
| March 2010 |
I am a Psychologist working in a mental health institution in Portugal. We have recently received a patient with severe behavior modification and impaired cognitive functioning. He is 16 years old and until now he has been considered a "normal adolescent". Some testing is being done and the doctor discovered that he suffers from Spina Bifida, something that until now nobody had known. Could this disease be related to the cognitive and behaviour modification I´ve told you about? |
| February 2010 |
My girlfriend is now pregnant and is using M.A.C.E to help her go to the bathroom. She uses glycerin and salt and water. Can this affect the baby? |
| January 2010 |
Our son, age l7, has recently been diagnosed with Occulta. We were told by a specialist that if he was going to have Spina Bifida, this was the any type to have, and that he can live a normal life. However, my son still complains of back problems and recently he was at a Camp in the U.S. and put out his back again. My son is an excellent basketball player. His goal is BASKETBALL and he is very, very good. If he's already been complaining of back problems, what could we do? Is he making his back worse by playing in competitive sports? What can we give him nutritionally (supplements), other treatments, or clinical trials, to help him ease the pain? |
| December 2009 |
I am 65 years old and have just been informed by my "new" doctor that I have Spina Bifida. It was detected through blood tests ordered by this doctor. This news today was rather alarming that I would have had it since birth. I have had no indication or obvious signs over the years to indicate I had Spina Bifida. At my age, what should I be more informed or careful when I do things? Will it affect me to a greater degree later in life? Any information, pertaining to the discovery of this birth defect later in life, would be appreciated. |
| November 2009 |
I’m hoping you can help me with a question. I was told that there is a technique used at birth to lessen Spina Bifida. Can you tell me where I might find some information on this? |
| October 2009 |
I am a 21-year old-woman with Spina Bifida and just got married. We are looking forward to having a child soon. We were wondering about the use of Ditropan during pregnancy and nursing. |
| September 2009 |
My husband and I are using donor sperm for artificial insemination. |
| August 2009 |
I now have a colostomy and am in my chair full time. What should I do? |
| July 2009 |
Are people with Spina Bifida Occulta at an increased risk of osteoporosis? |
| June 2009 |
Spina Bifida, Shunts, and Hearing Sensitivity |
| May 2009 |
Is tethered cord release surgery going to cure me? |
| April 2009 |
How safe is chiropractic care and medical massage? |
| January 2009 |
I have a 3 ½-month old granddaughter who had a dimple at the base of her spine when she was born. |
| November/ December 2008 |
I am an adult with Spina Bifida that would like to have eye surgery to correct my near-sightedness. Is it safe for me? I have a VP shunt? |
| October 2008 |
I find it hard as a wheelchair user to do regular aerobic activity. Am I at greater risk for a heart attack? |
| September 2008 |
I am an adult with Spina Bifida. How often should I see my physicians? |
Archive
| August 2008 |
Can I go scuba diving with a ventricular shunt? |
| July 2008 |
I am a parent of a child with Spina Bifida. We are in the military and move often. Do you know what type of technology is available that condenses all of my child's medical history so we do not have to pay for films and carry huge files? |
| June 2008 |
I am a college student with Spina Bifida. My home is Indiana , but I go to school in New York. The University I attend has a health clinic for students. Can I go there for care or should I find an off-campus physician? |
| May 2008 |
I have a question regarding sex and Spina Bifida. My girlfriend has Spina Bifida and she has difficulty with bladder control. She wonders if she can have sex with poor bladder control. Can you please provide me with some information regarding this? |
| April 2008 |
I am 18 years old and need to find a doctor. What do I do? |
| March 2008 |
I want to develop a sexual relationship with my partner but I am afraid of losing control of my bowel and bladder. What do I do? |
| February 2008 |
When do I let my child with Spina Bifida catheterize? |
| January 2008 |
Can a person with Spina Bifida father a child? |
| December 2007 |
Folate for Woman Related to Child with SB |
| November 2007 |
Folate for Woman Related to Child with Spina Bifida |
| October 2007 |
Pregnancy in SB |
| September 2007 |
Adult tethered cord release and recurrance |
| August 2007 |
Delivery of baby for women with SB |
| July 2007 |
Adult Back Pain |
| June 2007 |
Risk Factor |
