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Spina Bifida
FAQ About Spina Bifida
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Pregnancy in SB
July 2009: Are people with Spina Bifida Occulta at an increased risk of osteoporosis?
Folate for Woman Related to Child with SB
Delivery of baby for women with SB
Adult tethered cord release and recurrance
May 2009: Is there a genetic blood test yet that predicts a neural tube defect?
Is there a genetic blood test yet that predicts a neural tube defect?
Can a person with Spina Bifida father a child?
When do I let my child with Spina Bifida catheterize?
I want to develop a sexual relationship with my partner but I am afraid of losing control of my bowel and bladder
I am an adult with Spina Bifida that would like to have eye surgery
I am 18 years old and need to find a doctor
I have a question regarding sex and Spina Bifida
I am a college student with Spina Bifida. My home is Indiana , but I go to school in New York.
I am a parent of a child with Spina Bifida.
Can I go scuba diving with a ventricular shunt
I find it hard as a wheelchair user
SB and shunts have heightened hearing sensitivity
August 2009: I now have a colostomy and am in my chair full time. What should I do?
September 2009: My husband and I are using donor sperm for artificial insemination
I have a question regarding sex and Spina Bifida. My girlfriend has Spina Bifida
I have a 3 ½-month old granddaughter who had a dimple at the base of her spine
October 2009: I am a 21-year old-woman with Spina Bifida and just got married.
December 2009
January 2010
Quality Of Life
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B Healthy Recipes - Spring 2009
B Healthy Recipes - Winter 2009
B Healthy Recipes - Summer 2008
B Healthy Recipes - Fall 2008
B Healthy Recipes - Fall 2009
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Night of 100 Parties
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October 2008: SBA Leaders Visit Capitol Hill
July 2008: Let’s Get Physical
July 2008: Medicare Changes Reimbursement Policy on Intermittent Catheterization
July 2008: The Spina Bifida Community’s Goodwill Ambassadors
July 2008: Tatiana Goes for the Gold
July 2008: John Page Plans Expedition for Spina Bifida Awareness
July 2008: SBA Wraps Up the 35th National Conference
October 2008: Paralympics and Olympics Wrap-up
October 2008: Reaching for PossibilitiesTeaching Optimism, Emotional Resilience and Hope in Recovery and Rehabilitation
October 2008: October Is Spina Bifida Awareness Month
October 2008: Expanding Civil Rights for the Disabled
July 2009: SBA Prevention Program – Get Involved
July 2009: Are Individuals with Special Needs Ready for Emergencies?
July 2009: A Boy Scouts of America Journey for a Mother and Son
July 2009: 36th National Conference Concludes
July 2009: What You Need to Know about Latex Allergies
April 2008 eInsights: “B” Healthy Recipes for You and Your Health
April 2008 eInsights: National Spina Bifida Program
April 2008 eInsights: National Survey of the Spina Bifida Community
April 2008 eInsights: Online Communities Provide Valuable Connections
April 2008 eInsights: Talking Teens and Young Adults Blazing a New Path
October 2009: CDC Issues Updated Vaccination Recommendations for Swine Flu
October 2009: Latex Free Toys
October 2009: Night of 100 Parties
October 2009: National Spina Bifida Patient Registry
October 2009: Walk-N-Roll for Spina Bifida
January 2010: NCFA and SBA Take to the Airwaves-and Net-to Celebrate Folic Acid Awareness Week
January 2010: Eliminating Barriers to Accessibility Is a Team Effort
January 2010: A Win for Spina Bifida, Patients, Families and Advocates
January 2010: Haiti's Devastating Earthquake
January 2010: Important Information about Seasonal Flu from the CDC
News
October 3, 2007 Folic Acid Mandate Foils Birth Defects
Finding reasons to be thankful
May 7, 2009 - SBA Professional Advisory Council Issues Statement about Swine Flu and Spina Bifida
August 18, 2009: CDC Issues Updated Vaccination Recommendations
September 14, 2009: Mary Jo Dunleavy, Long-time Spina Bifida Champion, Passes Away
August 19, 2009: SBA Mourns Loss of Two Media Giants and Spina Bifida Supporters
SBA and SBF Announce 2010 Research Funding
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Ask the Doctor Archive
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Quality Of Life
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Current
Date
Title
January 2010
Our son, age l7, has recently been diagnosed with Occulta. We were told by a specialist that if he was going to have Spina Bifida, this was the any type to have, and that he can live a normal life. However, my son still complains of back problems and recently he was at a Camp in the U.S. and put out his back again. My son is an excellent basketball player. His goal is BASKETBALL and he is very, very good. If he's already been complaining of back problems, what could we do? Is he making his back worse by playing in competitive sports? What can we give him nutritionally (supplements), other treatments, or clinical trials, to help him ease the pain?
Date
Title
December 2009
I am 65 years old and have just been informed by my "new" doctor that I have Spina Bifida. It was detected through blood tests ordered by this doctor. This news today was rather alarming that I would have had it since birth. I have had no indication or obvious signs over the years to indicate I had Spina Bifida. At my age, what should I be more informed or careful when I do things? Will it affect me to a greater degree later in life? Any information, pertaining to the discovery of this birth defect later in life, would be appreciated.
November 2009
I’m hoping you can help me with a question. I was told that there is a technique used at birth to lessen Spina Bifida. Can you tell me where I might find some information on this?
October 2009
I am a 21-year old-woman with Spina Bifida and just got married. We are looking forward to having a child soon. We were wondering about the use of Ditropan during pregnancy and nursing.
September 2009
My husband and I are using donor sperm for artificial insemination
.
August 2009
I now have a colostomy and am in my chair full time. What should I do?
July 2009
Are people with Spina Bifida Occulta at an increased risk of osteoporosis?
June 2009
Spina Bifida, Shunts, and Hearing Sensitivity
May 2009
Is tethered cord release surgery going to cure me?
April 2009
How safe is chiropractic care and medical massage?
January 2009
I have a 3 ½-month old granddaughter who had a dimple at the base of her spine when she was born.
November/ December 2008
I am an adult with Spina Bifida that would like to have eye surgery to correct my near-sightedness. Is it safe for me? I have a VP shunt?
October 2008
I find it hard as a wheelchair user to do regular aerobic activity. Am I at greater risk for a heart attack?
September 2008
I am an adult with Spina Bifida. How often should I see my physicians?
Archive
August 2008
Can I go scuba diving with a ventricular shunt?
July 2008
I am a parent of a child with Spina Bifida. We are in the military and move often. Do you know what type of technology is available that condenses all of my child's medical history so we do not have to pay for films and carry huge files?
June 2008
I am a college student with Spina Bifida. My home is Indiana , but I go to school in New York. The University I attend has a health clinic for students. Can I go there for care or should I find an off-campus physician?
May 2008
I have a question regarding sex and Spina Bifida. My girlfriend has Spina Bifida and she has difficulty with bladder control. She wonders if she can have sex with poor bladder control. Can you please provide me with some information regarding this?
April 2008
I am 18 years old and need to find a doctor. What do I do?
March 2008
I want to develop a sexual relationship with my partner but I am afraid of losing control of my bowel and bladder. What do I do?
February 2008
When do I let my child with Spina Bifida catheterize?
January 2008
Can a person with Spina Bifida father a child?
December 2007
Folate for Woman Related to Child with SB
November 2007
Folate for Woman Related to Child with Spina Bifida
October 2007
Pregnancy in SB
September 2007
Adult tethered cord release and recurrance
August 2007
Delivery of baby for women with SB
July 2007
Adult Back Pain
June 2007
Risk Factor