Advisory Councils & Committees

Adult Advisory Council

The Adult Advisory Council (AAC) serves as a critical community champion of the Spina Bifida Association and adults with Spina Bifida. The members of the ACC share their gifts in service to our mission by providing SBA with their expertise; their diverse knowledge of constituent perspectives, their connections to local, national, and international resources, colleagues, and peers; their philanthropic support or other forms of needed assistance.

Members provide a diverse perspective on the needs and expectations of their peers and point SBA to valuable community, national, and even international resources. The service term is two years, and members may choose to re-apply at the end of their term.

To benefit from as many adult perspectives as possible, SBA strives to include members from various areas of the country, and diverse socioeconomic levels, ages, ethnicities, professions, and backgrounds.   

The AAC features two committees. In addition to their areas of focus, both groups suggest topics, content, and presenters to be featured in SB-YOU virtual presentations, SBA’s signature educational webinar series designed for, about, and by adults with Spina Bifida. 

  • Healthcare for Adults: members of this working group collaborate to identify and decrease health service and information deficits for adults living with Spina Bifida.
  • Resources and Support: members seek ways to assist their adult peers with their questions about living with Spina Bifida, or connect them to other experienced adults or others who can help them address their needs.


Amy Saffell Karen Cushynr
Brian Gutiérrez Karlin Bruegel
Brian Malone Kristine Takemoto
Caitlin Shemas Libby Powers
Cameron Williams Melissa Kaye Ortiz
Charlotte Mountz Monica Albert Still
Clarissa Noel Randi Brynteson
Danielle Tate Sarah Zetzl
Jay Dashefsky
Interested in joining the AAC?

Adult Advisory Council members should:

  • Be adults with Spina Bifida and be familiar with SBA programs and services;
  • Be able to participate effectively in a collaborative group process, which requires the ability to listen to and work well with other Council members;
  • Be able to provide feedback in a respectful manner; 
  • Be open to a diversity of ideas; and
  • Be able to keep the required information confidential
Please note, this is a VOLUNTEER council. All members who serve on this council are volunteers.
Does this sound like you?

Be sure to apply for the 2024-2026 term. The application period will be open through January 31, 2024.

Resources for Adults with Spina Bifida

We're here to make your life easier. We have information & resources that can help to inform and keep you healthy as an adult living with Spina Bifida.

Resources & Information