Advocate

Federal and State Governments play a vital role in Spina Bifida research, health care, and the ability of people with Spina Bifida to have access to affordable care and treatment. We are a powerful voice advocating on behalf of the Spina Bifida community. We visit over 50 offices on Capitol Hill each year advocating for on behalf of the entire Spina Bifida community and affiliated organizations.  Our goal is to help educate Members of Congress about the needs of all those affected by Spina Bifida so they make informed, smart decisions around legislation affecting Spina Bifida research and access to treatment and care.