MedStar’s National Rehabilitation Hospital’s Bladder Rehabilitation Research and Training Center (RRTC) is a national leader in Neurogenic Lower Urinary Tract Dysfunction (NLUTD), also known as neurogenic bladder.

Located at MedStar National Rehabilitation Hospital in Washington, D.C., their team works collaboratively to investigate ways to produce positive outcomes for people who live with NLUTD, including the thousands of children, teens, and adults with Spina Bifida who manage neurogenic bladder throughout their lives.

The Spina Bifida Association is pleased to collaborate with the RRTC by helping them get the word out about their variety of programs and materials created to increase knowledge and understanding of neurogenic bladder.

FACT SHEETS

1. What are Symptoms of Neurogenic Lower Urinary Tract Dysfunction (NLUTD)?
2. Urinary Tract Infections with NLUTD
3. What is Underactive Neurogenic Lower Urinary Tract Dysfunction (NLUTD)?
4. Bladder and Sexual Health for Women with Paralysis
5. Managing Neurogenic Lower Urinary Tract Dysfunction (NLUTD)

RESEARCH OPPORTUNITIES

The Research and Rehabilitation Training Center at MedStar National Rehabilitation Hospital in Washington, DC is recruiting participants for a research study to determine the best dosage of probiotic bladder wash to reduce urinary symptoms. Participants must be at least 18 years old with neurogenic bladder; use indwelling catheterization for bladder management; and have a history of recent episodes of urinary symptoms. Washington, DC area participants may also be eligible to provide asymptomatic urine samples, with a stipend of $20 for each sample collected. To learn more, contact Chris Riegner at [email protected] or call (202) 877-1560.

BLADDER REHAB BUZZ NEWSLETTERS

Bladder Rehab Buzz – May 2020

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BLADDERBUZZ PODCASTS

The BladderBuzz Podcasts focus on bladder health and wellness, and other topics related to disability.

You can find also BladderBuzz on Apple Podcasts, Google Podcasts and Spotify.

 

PODCAST – Emerging treatment: gene therapy for neurogenic bladder

The Bladder Buzz team is “buzzing” about this podcast- gene therapy for neurogenic bladder!
Dr. Argy Stampas interviews Dr. Philippe Chambon, Founder and CEO of EG 427, a French biotechnology company that is pioneering a new treatment strategy for management of neurogenic bladder. Take a listen to hear what all the buzz is about!

PODCAST – What is Bladder Botox

You’ve heard of BOTOX® as a cosmetic, but did you know that it can help with the management of Neurogenic Bladder? Join Drs. Argy Stampas and Rose Khavari as they discuss the challenges in managing incontinence due to neurogenic bladder and BOTOX® as a revolutionary treatment option. Why aren’t all our patients with neurogenic bladder getting BOTOX®- we talk about this as well. Tune in for this enlightening discussion.

PODCAST – Intimacy

Sex after paralysis can be intimidating. Join Ms. Cody Unser and Dr. Mandy Rounds to discuss this sometimes taboo, but fun, topic. This honest and lighthearted podcast begins the conversation that you can continue with your partner or even yourself. Hear Cody share some things to expect, tips and tricks, ways to educate your partner, and how your body may respond during intimacy.

PODCAST – Paralysis and Weight Management

Weight management and fitness can be a struggle after paralysis. Join Dr. Mandy Rounds and her co-stars Cody Unser and Harsh Thakkar as they explore how their perspectives changed regarding fitness and weight management after their Injuries. Cody and Harsh share their different approaches, barriers they’ve encountered, helpful tools, and free programs that are currently available in the community. This honest podcast does not sugar-coat this topic, but lets the listener know that you are not alone in the daily struggle of staying healthy.

PODCAST – Advocacy in Spinal Cord Injury

Are you interested in how to become an advocate for people with spinal cord injuries? Or have you experienced a spinal cord injury and want to learn how to advocate for yourself? Join rehabilitation psychologist Dr. Angela Kuemmel and occupational therapist Katie Powell as they discuss the Americans with Disabilities Act and how to advocate when challenges arise in the workplace and community.

PODCAST – Travel with a Disability

Are you dreaming of your next vacation? Wondering how you’ll navigate travel with a disability? There is a lot to consider when planning a trip. Join rehabilitation psychologist, Dr. Angela Kuemmel, and occupational therapist, Katie Powell, as they discuss accessible travel, including the logistics of airlines, finding accessible hotel accommodations, and visiting tourist destinations. If you or loved one has a disability and are planning to travel by plane, train, or bus then this podcast is for you!

PODCAST – What’s Neurogenic Bladder? For Kids and Families

Join experts in pediatrics and neurogenic bladder as they discuss the complexities of neurogenic bladder management in kids. If you are a child or a family member of a child with a neurogenic bladder, this show is for you.

PODCAST – What’s Neurogenic Bladder? For Patients and Families

This episode discusses the complexity of having and managing a neurogenic bladder. If you, a family member, or a friend struggles to understand and manage a neurogenic bladder, this podcast is for you.

PODCAST – Mental Health During a Pandemic

This episode, presented Dr. Elizabeth Scriven, Amy Saffell, and Adam Guerrero — adults with Spina Bifida — discusses how to maintain mental health and wellness during a pandemic and around holidays.

PODCAST: Dating and Relationships

If you have a mobility impairment and use a wheelchair or other assistive device and you’re concerned about how others might view a romantic relationship with you, this episode presented by Ms. Chanelle Wimbish and Dr. Carter Denny is for you.

PODCAST: Women’s Health after Paralysis

After paralysis, having your regular women’s health check-up is a necessary process that can feel daunting. There are many concerns that may have you worried such as whether the building is accessible, the knowledge of your health care provider, stigma, how your body will react to the exam, and more. Join Ms. Cody Unser and Dr. Mandy Rounds as they dive into this topic and address these “touchy” but important concerns head on!

PODCAST: Urinary Symptoms Management

Spina Bifida Association is collaborating with MedStar National Rehabilitation Hospital’s Rehabilitation Research and Training Center on Neurogenic Lower Urinary Tract Dysfunction (NLUTD, also known as neurogenic bladder).  The RRTC on NLUTD has created new podcasts focusing on bladder health and wellness, and other topics related to disability, entitled BladderBuzz. In the podcast “Urinary Symptoms Management” you will learn about a new monitoring tool might help you determine if your urinary symptoms may need medical attention or whether you might be able to manage symptoms at home.