Resource

Contributors to the Guidelines for the Care of People with Spina Bifida

  • Richard Adams, MD, Texas Scottish Rite Hospital for Children  
  • Lusine Ambartsumyan, MD, Seattle Children’s Hospital
  • Sharon Baillie, RN, CNC, MN, Hunter New England Health District Newcastle, Australia
  • Marcia A. Barnes, PhD, University of Texas  
  • Michelle A. Baum, MD, Boston Children’s Hospital  
  • Patricia Beierwaltes, DNP, CPNP, Guideline Steering Committee Co-Chair, Assistant Professor, Nursing, Minnesota State University, Mankato
  • Melissa Bellin, PhD, MSW, University of Maryland
  • Anne Berndl, MD, MSc, Sunnybrook Health Sciences Center Toronto  
  • Jeffrey P. Blount, MD, University of Alabama at Birmingham
  • Julie Bolen, PhD, MPH, Lead Health Scientist, Rare Disorders Health Outcomes Team, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
  • Robin Bowman, MD, Ann & Robert H Lurie Children’s Hospital of Chicago
  • Timothy J. Brei, MD, Spina Bifida Association Medical Director; Professor of Pediatrics, Division of Developmental Medicine, Seattle Children’s Hospital, University of Washington School of Medicine
  • Heidi A. Castillo, MD, Texas Children’s Hospital
  • Jonathan Castillo, MD, MPH, Texas Children’s Hospital
  • Jerome B. Chelliah, MD, MPH, Johns Hopkins Bloomberg School of Public Health
  • Lorry Chen, RD, Holland Bloorview Kids Rehabilitation Hospital, Toronto
  • Paige Church, MD, University of Toronto
  • Michael J. Conklin, MD, Children’s Hospital of Alabama
  • Mark Dias, MD, Penn State Children’s Hospital
  • Brad E. Dicianno, MD, Guideline Steering Committee Co-Chair; Associate Medical Director and Chair of Spina Bifida Association’s Professional Advisory Council; Associate Professor, Department of Physical Medicine and Rehabilitation, University of Pittsburgh School of Medicine
  • Julie Dicker, RN, The Children’s Hospital at Westmead, Sydney, Australia  
  • Nienke Dosa MD, MPH, Guideline Steering Committee Co-Chair, Upstate Foundation Professor of Child Health Policy, SUNY Upstate Medical University
  • Jack M. Fletcher, PhD, ABPP (ABCN), University of Houston  
  • John Foley, PhD, Indiana University School of Medicine
  • Ellen Fremion, MD, Baylor College of Medicine Transition Medicine Clinic
  • Dominic C. Frimberger, MD, University of Oklahoma College of Medicine
  • John S. Fuqua, MD, Riley Hospital for Children at Indiana University Health
  • Tiffany Gordon, MSN, RN, CPN, Gillette Children’s Specialty Healthcare
  • Toyia Greene, MSW, Loma Linda Hospital, California   
  • Nora Henle, Scribe, Spina Bifida Association Marketing Manager
  • Adrienne Herron, PhD, Behavioral Scientist, Intervention Research Team, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Centers for Disease Control and Prevention
  • Gregory Heuer, MD, PhD, Children’s Hospital of Philadelphia
  • Grayson Holmbeck, PhD, Loyola University, Chicago
  • Betsy Hopson, MSHA, Children’s Hospital of Alabama
  • Amy Houtrow, MD, PhD, MPH, Children’s Hospital of Pittsburgh   
  • Lori J. Howell, RN, MS, DNP, Children’s Hospital of Philadelphia   
  • David B. Joseph, MD, FACS, FAAP, University of Alabama at Birmingham
  • David Kanter, MD, Upstate University Hospital Syracuse, New York
  • Melissa Kaufman, MD, Vanderbilt University Medical Center
  • Kevin Kelly, MD, LCMC Health
  • Lizabeth Kelly, PT, Hershey Pennsylvania Private Practice  
  • Rose Khavari, MD, Houston Methodist Hospital
  • Shyam Kishan, MD, Indiana University School of Medicine
  • Julianne Lane, RN, Sydney Children’s Hospital
  • Sue Leibold, RN, MS, Texas Scottish Rite Hospital for Children
  • Sue Lockwood Community Outreach Coordinator, Allergy & Asthma Network
  • Lynne Romeiser Logan, PT, PhD, PCS, Upstate University Hospital Syracuse New York
  • Claire McDonagh, OT, Sydney Children’s Hospital
  • Suzanne McKee, RN, BSN, Orlando Health Arnold Palmer Hospital for Children
  • Amy C McPherson, PhD, Dalla Lana School of Public Health University of Toronto, Canada
  • Mark Merkens, MD, Oregon Health & Science University
  • Rosalia Misseri, MD, FAAP, Indiana University School of Medicine
  • Ann Modrcin, MD, EMBA, Children’s Mercy, Kansas City
  • Shubhra Mukherjee, MD, Shriner’s Hospital Chicago
  • Sharon Munoz, RN, MS, BC-CNS, CWOCN, Children’s Hospital of Michigan
  • Chanka B. Nanayakkara MBBS, FRACP, FAFRM, John Hunter Hospital Newcastle, Australia
  • Margaret Nosek, PhD, Baylor College of Medicine
  • Joseph O’Neil, MD, MPH, FAAP, Riley Hospital for Children at Indiana University Health
  • Katherine Ong, PhD, Scribe, National Center on Birth Defects and Developmental Disabilities
  • Michael Partington, MD, Gillette Children’s Specialty Healthcare
  • Priya Patel, MPH, Scribe, National Center on Birth Defects and Developmental Disabilities
  • Iris A. Perez, MD, Children’s Hospital Los Angeles
  • Jennifer Turek Queally, PhD, Boston Children’s Hospital
  • Lisa Raman, RN, MScANP, Med, Director of Nursing Committee and Educational Initiatives, Worldwide Syringomyelia & Chiari Task Force; Former Spina Bifida Association Director, Patient and Clinical Services
  • Ravindra Rao, MD, Loma Linda University Medical Center California
  • Arthur Robin, PhD, Children’s Hospital of Michigan  
  • Brandon Rocque, MD, University of Alabama at Birmingham
  • Michele Roland, MD, Children’s Hospital Los Angeles
  • Samuel R. Rosenfeld, MD, FAAOS, FAOA, Children’s Hospital, Orange County, California
  • Kathleen J. Sawin, PhD, CPNP-PC, FAAN, University of Wisconsin, Milwaukee
  • Rebecca Sherlock, MSN, PNP, Boston Children’s Hospital, Massachusetts  
  • Kathryn Smith, RN, MN, DrPH, Keck School of Medicine of the University of Southern California
  • Sara Struwe, MPA, Spina Bifida Association President & Chief Executive Officer
  • Stacey T. Tanaka, MD, MS, Vanderbilt University Medical Center
  • Judy Thibadeau, RN, MN, Spina Bifida Association Director, Research and Services, and former Health Scientist, National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
  • Jonathan Tolentino, MD, Stony Brook University, New York
  • Lee Towns, Scribe, Former Spina Bifida Association Director of Marketing and Communications
  • Margaret Turk, MD, State University of New York, Upstate Medical University
  • Alex Van Speybroeck, MD, MPH, Children’s Hospital Los Angeles
  • Kerri A  Vanderbom, PhD, The National Center on Health, Physical Activity and Disability (NCHPAD), UAB/Lakeshore Research Collaborative
  • Ashley Waddington, MD, MSc, Queens University, Ontario  
  • William O. Walker, Jr., MD, Seattle Children’s Hospital
  • Candice Walker, PhD, Texas Scottish Rite Hospital for Children
  • John S. Wiener, MD, Duke Health
  • Jennifer Wilhelmy, CWCN, APRN, CNP, Gillette Children’s Specialty Healthcare
  • Pamela Wilson, MD, Children’s Hospital Colorado
  • Hadley Wood, MD, Glickman Urological and Kidney Institute at the Cleveland Clinic
  • Jason Woodward, MD, MS, Cincinnati Children’s Hospital
  • Elizabeth B. Yerkes, MD, Ann & Robert H Lurie Children’s Hospital of Chicago

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