Teal on the Hill

What is Teal on the Hill?

Teal on the Hill is the Spina Bifida Association’s advocacy day on Capitol Hill. It presents an opportunity for persons, families, and friends of those with Spina Bifida to meet face to face with their Members of Congress to share stories and talk about important policies and legislation.

Who should attend?

Anyone interested and/or affected by Spina Bifida, including:

  • Parents
  • Children*
  • Grandparents
  • Siblings
  • Adults with Spina Bifida
  • Clinicians
  • Friends
  • Disability Organizations

*We recommend that Children 10 and up attend Teal on the Hill. If you have a child under the age of 10, you can still bring them, we just advise that you have a second caregiver or person there with you to take the child if need be. Our time on Capitol Hill is long, requires lots of walking, and some long meetings.

What will happen while on the Hill?

We will work to schedule meetings with your Representatives and Senators. We are hopeful that you will be able to meet directly with your members to share your story. In the event that we are unable to schedule directly with your members, we will schedule time with key staff members. The training we provide will prepare you for a powerful, meaningful, and fun day.

What kinds of issues should we discuss?

That is up to you. Talk about what’s important to you and others you know. It may be challenging with finding a health care provider experienced in caring for someone with Spina Bifida; medical supplies or insurance concerns. And if it’s an issue on your mind, it probably impacts someone else.

Important issues for the Spina Bifida Association include: continued funding for the Spina Bifida program at the Centers for Disease Control & Prevention (CDC), research, disability rights, and affordable and accessible health insurance and medical supplies and technologies.

Is transportation provided?

We are unable to provide a bus because, due to security and traffic reasons, a bus can only let you off about 5 blocks from the congressional office buildings. And, there are multiple office buildings—on the Senate side, there are three office buildings and on the House side, there are five. Just getting to your meeting location would add additional time and energy. Taxicabs and services such as Uber and Lyft will provide a better way to get you where you need to be. They are able to let you out at the entrance to the building where your meetings begin.