World Congress


Name Discipline Affiliation
Timothy J Brei, MD


Developmental Pediatrics SBA Medical Director
Seattle Children’s Hospital4800 Sand Point Way NE, m/s OC9840

PO Box 5371

Seattle, WA  98105-0371


David B Joseph, MD


Pediatric Urology University of Alabama at Birmingham

Children’s Hospital

1600 7th Avenue South, Suite 318

Birmingham, AL 35233-1711


Ann Alriksson-Schmidt, PhD, MSPH

Associate Co-Chair


Psychology and Public Health


Lund University, Skåne University Hospital, Sweden


Robin Bowman, MD

Associate Co-Chair

Pediatric Neurosurgery Director, Spina Bifida Center

Ann & Robert H. Lurie

Children’s Hospital of Chicago

Associate Professor, Department of Neurological Surgery | Northwestern University Feinberg School of Medicine

225 E. Chicago Ave

Chicago, IL 60611


Kathryn Smith,  RN, MN, DrPH

Associate Co-Chair


Nursing and Public Health Co-Director, Spina Bifida Program, Children’s Hospital Los Angeles

Associate Professor of Clinical Pediatrics, Keck School of Medicine, University of Southern California


Andrew Zabel, PhD

Associate Co-Chair

Neuropsychology Clinical Neuropsychologist

Kennedy Krieger Institute

Associate Professor

Psychiatry and Behavioral Sciences

Johns Hopkins University School of Medicine



Jonathan Castillo, MD, MPH



Developmental-Behavioral Pediatrics

Health Disparities

Global Health



Associate Professor of Pediatrics

Director, Spina Bifida Program

Director, Global Patient Clinic

Developmental-Behavioral Pediatrics

Program for Immigrant and Refugee Child Health (PIRCH)

Texas Children’s Hospital/Baylor College of Medicine

Houston, Texas


Paige Terrien Church,  MD,


Neonatal-Perinatal Medicine Developmental Behavioral Pediatrics Associate Professor, Paediatrics

Medical Director, Neonatal Follow up Clinic

Sunnybrook Health Sciences Centre

Physician Lead, Spina Bifida/Spinal Cord Injury Program

Holland Bloorview Kids Rehabilitation

Toronto, ON M4N





Nienke (Prins) Dosa,   MD, MPH


Developmental and Behavioral Pediatrics Center for Development, Behavior and Genetics

Department of Pediatrics, SUNY Upstate Medical University

750 East Adams Street

Syracuse, NY 13210


Ellen Fremion, MD, FAAP, FACP Internal medicine-pediatrics, transition to adult care, care for adults with developmental disabilities.


Assistant Professor
Internal Medicine-Pediatrics
Baylor Transition Medicine Clinic,Physician for Adults with Intellectual Developmental Disabilities
Texas Children’s Spina Bifida Transition Clinic, Program Director
Houston, TX 77030


Brian Gutierrez Adult with SB Spina Bifida Advocate and Ambassador for the Spina Bifida Association – Southern CA Chapter.
Betsy Hopson, MHA


Health Administration Comprehensive Spina Bifida Program Coordinator

Children’s of Alabama

Birmingham, AL 35233


Amy Houtrow, MD, PHD, MPH Physical Functioning,

Physical Medicine and Rehabilitation,

Fetal Surgery


Professor of PM&R and Pediatrics
University of Pittsburgh
UPMC Children’s Hospital of Pittsburgh
Pittsburgh, PA 15224
Janet Jackson-Coty, PT, DPT, PCS


Physical Therapy


University of Pittsburgh and Thomas Jefferson Hospital

Philadelphia, PA

Ana Jimenez, MD


Pediatrics Hospital Nacional de Niños

Calle 20 y Paseo Colón 10103

San José, Costa Rica


Beth Padden , MD Pediatric Rehabilitation Specialist

Movement disorders of childhood


University Children’s Hospital Zurich, Swiss Children’s Rehab, Zurich Center for Spina Bifida



Brandon  Rocque, MD


Pediatric Neurosugery


Associate Professor

Department of Neurosurgery, Division of Pediatric Neurosugery

University of Alabama at Birmingham

Children’s of Alabama

Birmingham, AL


Samuel R. Rosenfeld, MD, FAAOS, FAAP, FAOA


Orthopedic Surgery Children’s Hospital of Orange County

Orange, California


Jonathan Routh, MD


Urology Chief, Duke Center for Children’s Surgery

Paul H. Sherman Distinguished Associate Professor of Surgery

Associate Professor in Pediatrics

Associate Professor in Population Health Sciences

Division of Urology

Duke University School of Medicine


Tess Simpson, PhD


Pediatric Rehabilitation Psychology Department of Rehabilitation Medicine, Children’s Hospital Colorado, Assistant Professor of Physical Medicine & Rehabilitation, University of Colorado School of Medicine
Sierra Smith Adult with SB/Support Group Leader Living with SB in Central Pennsylvania
Monica Still, RN RN, BSN

Adult with Spina Bifida

Retired Home Health Administrator
Hadley M. Wood, MD


Adult Urology Cleveland Clinic, Glickman Urological and Kidney Institute & Case Western-Lerner School of Medicine.