FOR IMMEDIATE RELEASE
Contact:
Spina Bifida Association
Giana Mills
(800) 621-3141
[email protected]
Release Date: October 6, 2025
New site enhances accessibility, streamlines support, and strengthens pathways for community connections
The Spina Bifida Association (SBA) has launched a newly redesigned website at www.spinabifidaassociation.org. The updated site offers a more accessible, user-friendly, and engaging experience for individuals with Spina Bifida, their families, healthcare professionals, researchers and advocates.
The redesign reflects SBA’s commitment to building a better and brighter future for all those impacted by Spina Bifida. This includes aiding the Spina Bifida community with resources, education, and opportunities for connection and advocacy. While the URL remains the same, the new site:
- Makes it easier to find relevant information. Whether you’re a parent, someone living with Spina Bifida, a healthcare provider, or a researcher, content is now organized in a way that helps you find it faster.
- Features updated photos that tell the story of the Spina Bifida community and show the real-life impact of SBA’s work and the people it serves.
- Helps connect members of the Spina Bifida community with local Chapters, attend events, locate clinics, and opportunities in research and healthcare.
- Makes it easy to search, donate, or reach out—no matter where you are on the site. All these updates are designed to make the SBA website more welcoming, useful, and empowering for everyone who visits.
“SBA’s new website reflects the points of view we’ve heard from across the Spina Bifida community – including parents, people with Spina Bifida, health care professionals, researchers, and advocates,” said Sara Struwe, SBA’s CEO. “The site will continue to evolve to serve the community’s complex needs.”
To explore the new site and learn more about SBA’s work, visit www.spinabifidaassociation.org.
About the Spina Bifida Association (SBA)
SBA, established in 1973, is the nation’s only voluntary health organization dedicated to improving healthcare outcomes for the over 166,000 Americans living with Spina Bifida—one of the most common, permanently disabling birth defects compatible with life. SBA and its network of local chapters support the Spina Bifida community through research, advocacy, educational programming, and direct information and referral support.
For more information on SBA, call (800) 621-3141 or visit www.spinabifidaassociation.org.
