Guidelines for the Care of People with Spina Bifida

The Guidelines were developed to give every healthcare professional—from generalist to specialist—a roadmap to the best evidence‑based and expert care from birth through adulthood.

Spina Bifida is the most commonly-occurring complex congenital birth defect associated with long-term survival. With this understanding, along with the knowledge of the multiple medical and psychosocial issues that people with Spina Bifida face, the Guidelines for the Care of People with Spina Bifida were first published by the Spina Bifida Association of America (now known as the Spina Bifida Association, SBA) in 1990 and revised in 1995. Both editions were the culmination of several years of work by the SBA’s Professional Advisory Council (PAC), as well as numerous consultants under the editorial leadership of Karen Rauen, RN, MSN. These guidelines were based on limited contemporary knowledge and expert opinion….