See the Guidelines for the Care of People with Spina Bifida

Our Priorities

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.


We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida.


We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care.


Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for Spina Bifida.


Our National Resource Center provides referrals and resources, responding to inquires in Spanish and English.

The Latest


How I Learned to Be Open About My Spina Bifida: Sarah’s Story

Spina Bifida is a part of my past, my present, and my future, but it's not what defines me.

-Sarah O'Connor, born with Spina Bifida

Find support in your community

We have Chapters across the country ready to provide education, networking, social events, and more.

Find a Chapter