We’re improving the lives of those living with Spina Bifida.

Our Priorities

The mission of the Spina Bifida Association is to promote the prevention of Spina Bifida and enhance the lives of all affected through research, advocacy, education, and support.


We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida.


We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care.


Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for Spina Bifida.


Our National Resource Center provides referrals and resources, responding to inquires in Spanish and English.

The Latest


Erica Comparin: Harper’s Determination

Three days before Mother’s Day in 2016 our baby girl was diagnosed with Spina Bifida

- Erica Comparin, Mother to Harper

Find support in your community

We have Chapters across the country ready to provide education, networking, social events, and more.

Find a Chapter

Join the national Spina Bifida community on Capitol Hill

Join the advocacy movement! Meet us in Washington D.C. in May for Teal on the Hill, the Spina Bifida community's only advocacy day.

Learn more