Spinal Cord Tethering
What is spinal cord tethering? Spinal cord tethering happens when the spinal cord gets stuck to the bones or tissues around it. Normally, the spinal cord…
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Traveling with a Disability
January 2026 Travel in the United States is getting easier for people with disabilities because of the Americans with Disabilities Act and better awareness of wheelchair…
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Symptomatic Chiari II Malformation
October 2024 Chiari type II malformation is often seen in people with myelomeningocele (also called open Spina Bifida). About 8 out of 10 people with spina…
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Men’s Health: Urologic and Sexual Function
Why Is Bladder Control Important for Sexual Activity? Most people with Spina Bifida (about 90–95%) have trouble controlling their bladder and bowels. This is called neurogenic…
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Sexual and Preventive Health for Women with Spina Bifida
January 2024 What women with Spina Bifida need to know about their bodies, sex, and staying healthy. Statement on Language In this sheet, we use the…
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Hydrocephalus and Shunts
September 2024 What Is Cerebrospinal Fluid (CSF)? Our brains make a special fluid called cerebrospinal fluid or CSF all the time. This fluid helps protect the…
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Orthopedics and Spina Bifida
September 2024 Many people born with Spina Bifida have problems with their bones, joints, or muscles at some point in their life. These problems can be…
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Hypertension and Spina Bifida
January 2024 What is hypertension? Hypertension, also called high blood pressure, is a medical condition in which the force of a person’s blood flowing through their…