For people living with spina bifida

Expectant Families

If you just learned your baby has Spina Bifida, we want you to know you are not alone. The Spina Bifida Association is here for you with information and resources. A team of healthcare providers will help and support you in making care decisions. And there’s a vast network of other parents who know what you are going through and are ready to answer questions and give you encouragement.

Support

We know receiving a Spina Bifida diagnosis can be confusing and scary when you don’t have much information. Many others have been through this experience and can help you during this time. The Spina Bifida Association can connect you with experienced parents who have been trained to support you with information, resources, and encouragement as you make decisions and navigate next steps.

There are different ways to connect with a mentor:

Information and Resources 

The following is an overview of what Spina Bifida is, what we know about its causes, and suggested steps during the first days and weeks after a Spina Bifida diagnosis.