Young Adults With Spina Bifida Face a Crisis in Care
Danielle and Marlon live hundreds of miles apart, but their stories echo one another’s. Both were born with Spina Bifida. Both grew up cared for by…
Danielle and Marlon live hundreds of miles apart, but their stories echo one another’s. Both were born with Spina Bifida. Both grew up cared for by…
The Spina Bifida Transition Toolkit is broken down into three distinct stages of transition: There are many valuable resources included in this toolkit that are associated…
When Jessica first received her son Parker’s Spina Bifida diagnosis, she felt lost and overwhelmed. Doctors painted a grim picture of what life would look like…
Author: Mica Phillips, Director, Aeroflow Urology Depending on the severity, Spina Bifida can have varying effects on mobility and can end up leading to continence issues…
For young people growing up with Spina Bifida, navigating the complexities of the adult healthcare system for the first time can be frustrating for both patients…
At just 20 years old, Shoshana Siegel has endured challenges that many of us can scarcely imagine. Born with Spina Bifida, Shoshana has faced a lifetime…
We can’t always see pain. But you can create a world where people don’t needlessly suffer. Jennifer was adventurous, giving, and fiercely loyal. She was the…
bLOG Instructions for Submitting Letters on Competitive Bidding to CMS, Sample Letter, and Additional Resources Sample Letter Subject: Comment on CMS-1828-P – Opposing Inclusion of Urological…