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A Guide to Spina Bifida For Expectant and New Parents

This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

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Living with Spina Bifida
Expectant Families
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Guidelines for the Care of People with Spina Bifida
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Guidelines for the Care of People with Spina Bifida
Lifespan Bowel Management Protocol

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Announcing our
2025-2030
Clinic Care Partners

Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

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Spina Bifida Research
Community-Centered Research Agenda
National Spina Bifida Patient Registry
Urologic Protocol

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Guidelines for the Care of People with Spina Bifida

The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

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Walk-N-Roll® for Spina Bifida

A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

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