For healthcare professionals

Guidelines for the Care of People with Spina Bifida

The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

System of Care

Care Coordination

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Health Promotion and Preventative Health Care Services

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Prenatal Counseling

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Transition

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Psychosocial Context for Self-Management

Family Functioning

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Mental Health

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Self-Management and Independence

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Quality of Life

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Neuropsychology and Neurosurgery

Neuropsychology

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Neurosurgery

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Mobility, Orthopedics, and Physical Activity

Mobility

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Orthopedics

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Physical Activity

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Urology and Sexual Health

Men's Health

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Sexual Health and Education

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Urology

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Women's Health

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Specific Health Issues

Bowel Function and Care

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Endocrine: Puberty and Precocious Puberty

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Endocrine and the Use of Human Growth Hormone

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Integument (Skin)

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Latex and Latex Allergy in Spina Bifida

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Nutrition, Metabolic Syndrome, and Obesity

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Osteoporosis and Bone Health

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Sleep-Related Breathing Disorders

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Appendix

Early Intervention Services, Individualized Education Plans (IEP) and 504 Plans

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