About Our Impact Making an impact 40+ Clinic Care Partners across the U.S. 15 years Fundraising with the annual Walk-n-Roll for the Spina Bifida community 4k+ People registered for our education sessions in 2023 Stories from Our Community All Stories Story Mary Cogan Holleran: A Person, not a Diagnosis “After Liam was born, he became a real person and not a diagnosis.” Story Sarah Avram: Being Unique is Better than Being Perfect Spina Bifida cannot stop me from singing, playing tennis, doing art, or toward my dream of becoming a pediatric specialist one day. Story Mark Deschamp: Challenges on Finding Adult Care I don’t think the process of finding a health care professional to see me, just because I have Spina Bifida, should be this hard. Ready to get involved? Take Action
Story Mary Cogan Holleran: A Person, not a Diagnosis “After Liam was born, he became a real person and not a diagnosis.”
Story Sarah Avram: Being Unique is Better than Being Perfect Spina Bifida cannot stop me from singing, playing tennis, doing art, or toward my dream of becoming a pediatric specialist one day.
Story Mark Deschamp: Challenges on Finding Adult Care I don’t think the process of finding a health care professional to see me, just because I have Spina Bifida, should be this hard.
