• Events
  • Blog
  • Shop
  • Find a Clinic
  • Contact
  • En Español
Search
Give
    • About Spina Bifida
    • Understanding the Diagnosis
    • Guidelines for the Care of People with Spina Bifida
    • Resources
    • FAQs
    • Find a Clinic
    • Find a Chapter
    • Get Help
    • Get Involved

    A Guide to Spina Bifida For Expectant and New Parents

    This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

    Learn more
    • Living with Spina Bifida
    • Expectant Families
      • Resources
    • Children with Spina Bifida
      • Resources
    • Adolescents and Transition
      • Resources
    • Adults with Spina Bifida
      • SB-YOU
      • Resources
    • Guidelines for the Care of People with Spina Bifida
    • Community Connections
      • Find a Chapter or Support Group
    • What is Spina Bifida?
    • Find a Clinic
    • Get Help
    • Events
    • For Healthcare Professionals
    • Become a Clinic Care Partner
    • Guidelines for the Care of People with Spina Bifida
    • Lifespan Bowel Management Protocol
    • What is Spina Bifida
    • About Spina Bifida Association
    • Impact
    • Get Involved

    Announcing our
    2025-2030
    Clinic Care Partners

    Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

    learn more
    • Spina Bifida Research
    • Community-Centered Research Agenda
    • National Spina Bifida Patient Registry
    • Urologic Protocol
    • What is Spina Bifida
    • About Spina Bifida Association
    • Impact

    Guidelines for the Care of People with Spina Bifida

    The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

    Learn More
    • Ways to Get Involved
    • Give
      • Donate Online
    • Advocate
    • Volunteer
    • Participate in an Event
    • What is Spina Bifida
    • About Spina Bifida Association
    • Impact
    • Get Involved

    Walk-N-Roll® for Spina Bifida

    A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

    Find an event
    • About Spina Bifida Association
      • Board of Directors and Staff
      • Councils and Committees
      • Strategic Plan
      • Reports & Financials
      • Awards
    • What We Do
      • Key Issues
      • Advocacy
      • Education and Training
      • Individual Support
      • Research
    • Impact
      • Stories
    • What is Spina Bifida
    • About Spina Bifida Association
    • Impact
    • Get Involved

About

Strategic Plan

2023 – 2025 Strategic PlanDownload
2020 – 2022 Strategic PlanDownload
2016 – 2018 Strategic PlanDownload

Spina Bifida Association events Walk-n-Roll

Walk-N-Roll® for Spina Bifida

A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

Find an event
Spina Bifida Association advocacy Teal on the Hill event

Teal on the Hill

Advocate for issues such as disability rights, affordable and accessible health care, medical supplies, and technologies.

Learn More

Clinical Care Meeting

An unparalleled opportunity to meet, network, collaborate, and learn all that’s new and unfolding in the SB community.

Learn more

Never miss an update!

Subscribe
  • What is Spina Bifida
  • Patients and Caregivers
  • Professionals
  • Research
  • Get Involved
  • About
  • Events
  • Blog
  • Shop
  • Find a Clinic

Contact

[email protected]

(800) 621-3141

2000 Duke Street
Suite 300
Alexandria, VA 22314

  • Facebook
  • X
  • Instagram
  • YouTube
  • Privacy Policy
  • Terms and Conditions
  • Accessibility Statement

© 2025 Spina Bifida Association of America. All Rights Reserved.

Design by substance151

Close

Search Give Contact Spina Bifida Association Contact