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A Guide to Spina Bifida For Expectant and New Parents

This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

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Announcing our
2025-2030
Clinic Care Partners

Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

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Spina Bifida Research
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Guidelines for the Care of People with Spina Bifida

The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

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Spina Bifida Awareness Month
Walk-N-Roll® for Spina Bifida

A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

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*Phoenix Children’s

Ages served: Children

602-933-KIDS (5437)

Address:

1919 E. Thomas
Phoenix, AZ 85016

Walk-N-Roll^® for Spina Bifida

A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

Teal on the Hill

Advocate for issues such as disability rights, affordable and accessible health care, medical supplies, and technologies.

Clinical Care Meeting

An unparalleled opportunity to meet, network, collaborate, and learn all that’s new and unfolding in the SB community.

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EIN: 58-1342181

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