For people living with spina bifida

Adolescents

Transition planning with the individual and their family is a lifelong process. Particular attention to preparation should begin between the ages of 12-14. This involves supporting the individual in the gradual, developmentally-appropriate assumption of increased independence and taking on more responsibilities for their self-care and condition management through coaching in the home, school, and clinic settings.

Information and Resources for Adolescents with Spina Bifida

Bowel Management
Mental Health
Urinary Incontinence
Preventative Care
Weight Management
Education
Self Management
Transition

Health Care Transition for Individuals with Spina Bifida

Transitioning from pediatric to adult care isn’t a single moment—it’s a lifelong journey that begins at birth. 

The Spina Bifida Health Care Transition Toolkit, developed by the American Academy of Pediatrics and the Spina Bifida Association, helps clinicians as they work together with families to make an effective transition.er content here

Finances, Benefits, Insurance, and Related Topics

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