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    A Guide to Spina Bifida For Expectant and New Parents

    This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

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    • Living with Spina Bifida
    • Expectant Families
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    Announcing our
    2025-2030
    Clinic Care Partners

    Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

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    • Spina Bifida Research
    • Community-Centered Research Agenda
    • National Spina Bifida Patient Registry
    • Urologic Protocol
    • What is Spina Bifida
    • About Spina Bifida Association
    • Impact

    Guidelines for the Care of People with Spina Bifida

    The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

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    • Spina Bifida Awareness Month

    Walk-N-Roll® for Spina Bifida

    A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

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