Providing Primary Care Services to Adults Living with Spina Bifida

The following resources supplement the content presented in the adult provider curriculum.


Living with Spina Bifida: What Adult Patients Would Like their Primary Care Providers to Know
Adults with Spina Bifida – YouTube Playlist
What is Spina Bifida? – Information Sheet
Health Promotion and Preventative Health Care Services Guideline
Quality of Life Guideline
The First Appointment with a Patient with Spina Bifida: Essential Topics
Adults with Spina Bifida – YouTube Playlist
What is Spina Bifida? – Information Sheet
Health Promotion and Preventative Health Care Services Guideline
Learning with Spina Bifida: The Neurocognitive Profile for Patients with Spina Bifida
Neurosurgical & Ophthalmologic Care for Adults with Spina Bifida
Neurosurgery Guideline
Spinal Cord Tethering Information Sheet (need to link)
Important Information About Sleep-Disordered Breathing in Adults with Spina Bifida
Sleep-Related Breathing Disorders Guideline
Suggestions to Support a Bowel Management Program for Adults with Spina Bifida
Lifespan Bowel Management Protocol
YouTube Bowel Management Playlist
Best Practices for Managing Neurogenic Bowel Dysfunction in Adults
Bowel Function and Care Guideline
Promoting Skin Health in Adults with Spina Bifida 
Integument (Skin) Guideline
Skin health / “Did You Look?” Skin Integrity Bundle
YouTube Skin Care Playlist
Social and Mental Health Supports for Your Patient with Spina Bifida
Employment and Benefits YouTube Playlist 
Financial Planning YouTube Playlist
Quality of Life Guideline
Mental Health Guideline
How Physical Medicine and Rehabilitation Colleagues Can Help Patients with Spina Bifida
About Physiatry
What is Spina Bifida Occulta? – Information Sheet
Ask the Expert: Spina Bifida Occulta
Adults with Spina Bifida – YouTube Playlist
Bone Health in Adults with Spina Bifida
Osteoporosis and Bone Health Guideline
Mobility Guideline
Orthopedics Guideline
Physical Activity Guideline
Adults with Spina Bifida – YouTube Playlist
Exploring Weight Management – Physical Activity
All Things Pee in Patients with Spina Bifida 
Urology Guideline – Information Sheet
YouTube Urological Care and Management Playlist
Sexuality and Women’s Health
Sexual & Reproductive Health for Adults with Spina Bifida
Sexual Health and Education Guideline
Men’s Health Guideline
Women’s Health Guideline
Sex and Intimacy – A Conversation with Men with Spina Bifida
Sexuality and Women’s Health
Sexual Function and Pregnancy in Adults with Spina Bifida
Becoming a Parent with Spina Bifida