About the Spina Bifida Association

Since its early days, the Spina Bifida Association has devoted itself to responding to the needs of those whose lives have been touched by Spina Bifida, one of the most common, permanently disabling birth defects that is compatible with life in the United States. SBA has done so by:

• its persistent advocacy efforts;
• in-depth research and review of current scientific and medical investigations;
• creating regular opportunities for members of the community to learn from and interact with each other;
• providing information that people with Spina Bifida and their families can use to improve their quality of life; and
• supply health care providers with best-practices that will help them care for people with Spina Bifida throughout their lives.