The number of adults with Spina Bifida continues to grow.

About half of people living with Spina Bifida in the United States are adults.

For many years, the medical community has focused on providing care for children, with many clinics throughout the country. Unfortunately, there are not adequate health care providers for adults. We are currently working with physicians across the country to develop models of care to provide adults with the care they need and deserve.

Adults living with Spina Bifida


Sydney Chasteen: Growing up and Becoming Independent

I don’t have many memories of growing up wishing I didn’t have Spina Bifida.

Sydney Chasteen

Guidelines for the Care of People with Spina Bifida

Ask that your physicians use these Guidelines as a roadmap to providing care.

View Guidelines

Resources for adults with Spina Bifida

I’m interested in resources related to:

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    Update on Complex Rehab Technology Legislation

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    SBA Advocacy and SBCCN

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    Improving Care: National Spina Bifida Patient Registry

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    SB-YOU: Taking Care of Your Mental Health

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    Hydrocephalus and Shunts in Children

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    SB-YOU: Get Fit and Stay Healthy