A Guide to Spina Bifida For Expectant and New Parents
This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida. When you first hear…
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Advocacy Alert – HHS Cuts Impact Programs Supporting People With Spina Bifida and Other Disabilities
As you may have heard, many of our Spina Bifida partners in the federal government have been directly impacted by the reduction in force (RIF) layoffs…
Genetically Targeted Technologies (GTT) and the MINI Act
Listen in as Sara Struwe, President and CEO of the Spina Bifida Association, and Laura Carlson, Volunteer Research Coordinator, as they further discuss Genetically Targeted Technologies (GTTs),…
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High Blood Pressure
September 2024 A health condition that’s easy to miss What Is High Blood Pressure? High blood pressure (also called hypertension) happens when the force of blood…
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Young Adults With Spina Bifida Face a Crisis in Care
Danielle and Marlon live hundreds of miles apart, but their stories echo one another’s. Both were born with Spina Bifida. Both grew up cared for by…
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Folic Acid and Methylfolate
Updated June 2024 Supplementation before conception reduces the risk of Spina Bifida Many factors can affect a pregnancy, including family genes and other circumstances. Though taking…
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Spina Bifida Transition Toolkit
The Spina Bifida Transition Toolkit is broken down into three distinct stages of transition: There are many valuable resources included in this toolkit that are associated…
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Spina Bifida Association Unveils Redesigned Website to Empower and Connect Community
FOR IMMEDIATE RELEASE Contact: Spina Bifida AssociationGiana Mills(800) [email protected] Release Date: October 6, 2025 New site enhances accessibility, streamlines support, and strengthens pathways for community connections The…
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Turning Passion into Purpose: Mrs. New York 2025, Christina Fanitzi
Meet Christina Fanitzi, Army Colonel and Mrs. New York 2025. A decorated military officer with over 22 years of service, Christina has led troops across the…
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SBA welcomes Dell Children’s Medical Center Spina Bifida Clinic into Clinic Care Partners program
FOR IMMEDIATE RELEASE Contact: Spina Bifida AssociationGiana Spear(202) [email protected] Release Date: Sept. 16, 2024 SBA welcomes Dell Children’s Medical Center Spina Bifida Clinic into Clinic Care Partners program…
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CMS announces designation of transanal irrigation (TAI) devices as “prosthetic devices” under the Medicare program
FOR IMMEDIATE RELEASE Contact: Spina Bifida AssociationGiana Mills(800) 621-3141gmills@bakkisbaa-org Release Date: Jan 21, 2025 CMS announces designation of transanal irrigation (TAI) devices as “prosthetic devices” under the Medicare…
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