Now you can have the Guidelines for the Care of People with Spina Bifida and a Symptom Tracker in the palm of your hands.
The app is currently under construction! Fill out this form and we will notify you when the app is back up and running.
This App is free and features an interactive way to view all 24 Guidelines and a symptom tracker for you to track your health to share with your physicians at an upcoming appointment.
Click HERE to download on an Apple device.
Click HERE to download on an Android device.
You can search the 24 Guidelines by age and by topic, making it easy for you to find evidence-based medical expert guidance for people with Spina Bifida from birth through adulthood.
The Symptom Tracker gives people with Spina Bifida the ability to securely:
- track health markers such as skin integrity and physical activity;
- keep an eye on symptoms like pain and problems with sleep;
- follow medications, bowel management plans, and catheter routines; and
- add notes specific to your situation
We encourage you to use this tool to create a “health diary” that you can share with your clinicians. We hope that by tracking your symptoms regularly, you can see changes that take place, understand your health better, and gain more control over your health care and treatment.
Development of this application was supported by the Rehabilitation Engineering Research Center for Community Living, Health and Function (LiveWell RERC) funded by a grant from the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) in the U.S. Department of Health and Human Services under (grant no. 90RE5028).