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A Guide to Spina Bifida For Expectant and New Parents

This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

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Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

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Guidelines for the Care of People with Spina Bifida

The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

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Spina Bifida Awareness Month
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A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

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Dr. Alexandra Rehfuss

December 11, 2025

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Dr. Alexandra Rehfuss

Dr. Alexandra Rehfuss

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Natural Rubber Latex Allergy and Spina Bifida

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Keeping Children with Spina Bifida Safe from Sexual Abuse

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Spinal Cord Tethering

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Precocious Puberty and Spina Bifida

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Hip Function and Ambulation

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Walk-N-Roll^® for Spina Bifida

A family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

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Advocate for issues such as disability rights, affordable and accessible health care, medical supplies, and technologies.

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An unparalleled opportunity to meet, network, collaborate, and learn all that’s new and unfolding in the SB community.

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The Spina Bifida Association is a qualified 501(c)(3) tax-exempt organization. EIN: 58-1342181

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