Events
Blog
Shop
Find a Clinic
Contact
En Español

About Spina Bifida
Understanding the Diagnosis
Guidelines for the Care of People with Spina Bifida
Resources
FAQs

Find a Clinic
Find a Chapter
Get Help
Get Involved
A Guide to Spina Bifida For Expectant and New Parents

This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

Learn more
Living with Spina Bifida
Expectant Families
Resources
Children with Spina Bifida
Resources

Adolescents and Transition
Resources
Adults with Spina Bifida
SB-YOU
Resources

Guidelines for the Care of People with Spina Bifida
Community Connections
Find a Chapter or Support Group

What is Spina Bifida?
Find a Clinic
Get Help
Events
For Healthcare Professionals
Become a Clinic Care Partner
Guidelines for the Care of People with Spina Bifida
Lifespan Bowel Management Protocol

What is Spina Bifida
About Spina Bifida Association
Impact
Get Involved
Announcing our
2025-2030
Clinic Care Partners

Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

learn more
Spina Bifida Research
Community-Centered Research Agenda
National Spina Bifida Patient Registry
Urologic Protocol

What is Spina Bifida
About Spina Bifida Association
Impact
Guidelines for the Care of People with Spina Bifida

The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

Learn More
Ways to Get Involved
Give
Donate Online
Advocate
Volunteer
Participate in an Event

What is Spina Bifida
About Spina Bifida Association
Impact
Get Involved
Spina Bifida Awareness Month
Walk-N-Roll® for Spina Bifida

A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

Find an event
About Spina Bifida Association
Board of Directors and Staff
Councils and Committees
Strategic Plan
Reports & Financials
Awards

What We Do
Key Issues
Advocacy
Education and Training
Individual Support
Research

Impact
Stories

What is Spina Bifida
About Spina Bifida Association
Impact
Get Involved