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    A Guide to Spina Bifida For Expectant and New Parents

    This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

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    • Living with Spina Bifida
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    Announcing our
    2025-2030
    Clinic Care Partners

    Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

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    • Spina Bifida Research
    • Community-Centered Research Agenda
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    Guidelines for the Care of People with Spina Bifida

    The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

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    Walk-N-Roll® for Spina Bifida

    A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

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Robert Kovell, MD

October 28, 2025

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Resources

All Resources
Resources

Learning Reference Sheet

Resources

Natural Rubber Latex Allergy and Spina Bifida

Resources

Keeping Children with Spina Bifida Safe from Sexual Abuse

Resources

Spinal Cord Tethering

News, Resources

Traveling with a Disability

Resources

Precocious Puberty and Spina Bifida

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Spina Bifida Association events Walk-n-Roll

Walk-N-Roll® for Spina Bifida

A family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

Find an event
Spina Bifida Association advocacy Teal on the Hill event

Teal on the Hill

Advocate for issues such as disability rights, affordable and accessible health care, medical supplies, and technologies.

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Clinical Care Meeting

An unparalleled opportunity to meet, network, collaborate, and learn all that’s new and unfolding in the SB community.

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The Spina Bifida Association is a qualified 501(c)(3) tax-exempt organization. EIN: 58-1342181

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Alexandria, VA 22314

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