For people living with sb
Children with Spina Bifida
Life with a child with Spina Bifida is filled with many emotions – joy, love, worry, exhaustion, and, of course, many questions.
Meeting the complex needs of a person affected by spina bifida involves the whole family and can be challenging at times. Finding resources, knowing what to expect, and planning for the future can help.
Information and Resources for Children with Spina Bifida
Bowel Management
Mental Health
Urinary Continence
Preventative Care
Weight Management
Education
Self-Management
Transition
Health Care Transition for Individuals with Spina Bifida
Transitioning from pediatric to adult care isn’t a single moment—it’s a lifelong journey that begins at birth.
The Spina Bifida Health Care Transition Toolkit, developed by the American Academy of Pediatrics and the Spina Bifida Association, helps clinicians as they work together with families to make an effective transition.
Finances, Benefits, Insurance, and Related Topics
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