Growing Up with Spina Bifida
Meet Brendan, parent, husband, and an adult with Spina Bifida. Brendan has the unique privilege of working for 180 Medical. Drawing on his firsthand experience of growing…
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A Guide to Spina Bifida For Expectant and New Parents
This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida. When you first hear…
Advocacy Alert – HHS Cuts Impact Programs Supporting People With Spina Bifida and Other Disabilities
As you may have heard, many of our Spina Bifida partners in the federal government have been directly impacted by the reduction in force (RIF) layoffs…
Genetically Targeted Technologies (GTT) and the MINI Act
Listen in as Sara Struwe, President and CEO of the Spina Bifida Association, and Laura Carlson, Volunteer Research Coordinator, as they further discuss Genetically Targeted Technologies (GTTs),…
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Growing Up with Spina Bifida
Meet Brendan, parent, husband, and an adult with Spina Bifida. Brendan has the unique privilege of working for 180 Medical. Drawing on his firsthand experience of growing…
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Depression and Anxiety
November 2024 Is it normal to feel sad sometimes? Yes. Everyone feels sad or worried once in a while. These feelings usually come and go and…
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Important CMS HCPCS Code Changes for Urinary Catheters: What They Mean for the Spina Bifida Community
People living with Spina Bifida often use intermittent catheterization to manage neurogenic bladder. The quality, comfort, and safety of catheters is essential to prevent complications like…
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