Skip to content

Blog
Shop
Find a Clinic
Walk-N-Roll for Spina Bifida
Contact
En Español
Events

About Spina Bifida
Understanding the Diagnosis
Guidelines for the Care of People with Spina Bifida
Resources
FAQs

National Resource Center
Find a Chapter
Find a Clinic
Find a Provider
Get Help
Get Involved
A Guide to Spina Bifida For Expectant and New Parents

This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida.

Learn more
Living with Spina Bifida
Expectant Families
Resources
Children with Spina Bifida
Resources

Adolescents and Transition
Resources
Adults with Spina Bifida
SB-YOU
Resources
Find a Provider

Guidelines for the Care of People with Spina Bifida
Community Connections
Find a Chapter or Support Group

What is Spina Bifida?
Find a Clinic
Get Help
Events
For Healthcare Professionals
Become a Clinic Care Partner
Guidelines for the Care of People with Spina Bifida
Lifespan Bowel Management Protocol

What is Spina Bifida
About Spina Bifida Association
Impact
Get Involved
Announcing our
2025-2030
Clinic Care Partners

Clinic Care Partners will strive to implement best practices in their clinic to ensure people with Spina Bifida receive the best care possible.

learn more
Spina Bifida Research
Community-Centered Research Agenda
National Spina Bifida Patient Registry
Urologic Protocol

What is Spina Bifida
About Spina Bifida Association
Impact
Guidelines for the Care of People with Spina Bifida

The Guidelines for the Care of People with Spina Bifida were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

Learn More
Ways to Get Involved
Give
Donate Online
Advocate
Volunteer
Participate in an Event

What is Spina Bifida
About Spina Bifida Association
Impact
Get Involved
Spina Bifida Awareness Month
Walk-N-Roll® for Spina Bifida

A free family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

Find an event
About Spina Bifida Association
Board of Directors and Staff
Councils and Committees
Strategic Plan
Reports & Financials
Awards

What We Do
Key Issues
Advocacy
Education and Training
Individual Support
Research

Impact
Stories

What is Spina Bifida
About Spina Bifida Association
Impact
Get Involved
GIVE

|

Dr. Mary Schmidt

January 9, 2026

|

|

Dr. Mary Schmidt

Dr. Mary Schmidt

Resources

All Resources

Resources

Learning Reference Sheet

Resources

Natural Rubber Latex Allergy and Spina Bifida

Resources

Keeping Children with Spina Bifida Safe from Sexual Abuse

Resources

Spinal Cord Tethering

News, Resources

Traveling with a Disability

Resources

Precocious Puberty and Spina Bifida

Stay Informed

Receive the latest updates, research and resources delivered straight to your inbox.

Subscribe

Walk-N-Roll^® for Spina Bifida

A family friendly, non-competitive one mile fundraiser that raises awareness about Spina Bifida.

Teal on the Hill

Advocate for issues such as disability rights, affordable and accessible health care, medical supplies, and technologies.

Clinical Care Meeting

An unparalleled opportunity to meet, network, collaborate, and learn all that’s new and unfolding in the SB community.

Never miss an update!

The Spina Bifida Association is a qualified 501(c)(3) tax-exempt organization. EIN: 58-1342181

What is Spina Bifida
Patients and Caregivers
Professionals
Research
Get Involved
About

Events
Blog
Shop
Find a Clinic

Contact

[email protected]

2000 Duke Street
Suite 300
Alexandria, VA 22314

Facebook
X
Instagram
YouTube

Privacy Policy
Terms and Conditions
Accessibility Statement

© 2026 Spina Bifida Association of America. All Rights Reserved.

Close