Growing Up with Spina Bifida
Meet Brendan, parent, husband, and an adult with Spina Bifida. Brendan has the unique privilege of working for 180 Medical. Drawing on his firsthand experience of growing…
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A Guide to Spina Bifida For Expectant and New Parents
This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida. When you first hear…
Advocacy Alert – HHS Cuts Impact Programs Supporting People With Spina Bifida and Other Disabilities
As you may have heard, many of our Spina Bifida partners in the federal government have been directly impacted by the reduction in force (RIF) layoffs…
Genetically Targeted Technologies (GTT) and the MINI Act
Listen in as Sara Struwe, President and CEO of the Spina Bifida Association, and Laura Carlson, Volunteer Research Coordinator, as they further discuss Genetically Targeted Technologies (GTTs),…
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Growing Up with Spina Bifida
Meet Brendan, parent, husband, and an adult with Spina Bifida. Brendan has the unique privilege of working for 180 Medical. Drawing on his firsthand experience of growing…
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Natural Rubber Latex Allergy and Spina Bifida
People with Spina Bifida are at high risk for latex allergy. From birth, they should avoid natural latex products. Safer options include silicone, plastic, nitrile, or…
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Keeping Children with Spina Bifida Safe from Sexual Abuse
What families need to know Children with Spina Bifida, like all children, go through sexual development. As they get older, they share the same interests as…
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Spinal Cord Tethering
What is spinal cord tethering? Spinal cord tethering happens when the spinal cord gets stuck to the bones or tissues around it. Normally, the spinal cord…
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Traveling with a Disability
January 2026 Travel in the United States is getting easier for people with disabilities because of the Americans with Disabilities Act and better awareness of wheelchair…
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Precocious Puberty and Spina Bifida
Resource Early Puberty Children with Spina Bifida and hydrocephalus may start puberty earlier than other kids their age. What Is Puberty? Puberty is when a child’s…
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Symptomatic Chiari II Malformation
October 2024 Chiari type II malformation is often seen in people with myelomeningocele (also called open Spina Bifida). About 8 out of 10 people with spina…
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Men’s Health: Urologic and Sexual Function
Why Is Bladder Control Important for Sexual Activity? Most people with Spina Bifida (about 90–95%) have trouble controlling their bladder and bowels. This is called neurogenic…
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Sexual and Preventive Health for Women with Spina Bifida
January 2024 What women with Spina Bifida need to know about their bodies, sex, and staying healthy. Statement on Language In this sheet, we use the…
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