Growing Up with Spina Bifida
Meet Brendan, parent, husband, and an adult with Spina Bifida. Brendan has the unique privilege of working for 180 Medical. Drawing on his firsthand experience of growing…
Blog
A Guide to Spina Bifida For Expectant and New Parents
This resource contains information for parents who have received a diagnosis or parents who have recently had a baby with Spina Bifida. When you first hear…
Advocacy Alert – HHS Cuts Impact Programs Supporting People With Spina Bifida and Other Disabilities
As you may have heard, many of our Spina Bifida partners in the federal government have been directly impacted by the reduction in force (RIF) layoffs…
Genetically Targeted Technologies (GTT) and the MINI Act
Listen in as Sara Struwe, President and CEO of the Spina Bifida Association, and Laura Carlson, Volunteer Research Coordinator, as they further discuss Genetically Targeted Technologies (GTTs),…
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Growing Up with Spina Bifida
Meet Brendan, parent, husband, and an adult with Spina Bifida. Brendan has the unique privilege of working for 180 Medical. Drawing on his firsthand experience of growing…
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Symptomatic Chiari II Malformation
October 2024 Chiari type II malformation is often seen in people with myelomeningocele (also called open Spina Bifida). About 8 out of 10 people with spina…
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Men’s Health: Urologic and Sexual Function
February 2022 Why Is Bladder Control Important for Sexual Activity? Most people with Spina Bifida (about 90–95%) have trouble controlling their bladder and bowels. This is…
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Sexual and Preventative Health for Women with Spina Bifida
January 2024 What women with Spina Bifida need to know about their bodies, sex, and staying healthy. Statement on Language In this sheet, we use the…
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Hydrocephalus and Shunts
September 2024 What Is Cerebrospinal Fluid (CSF)? Our brains make a special fluid called cerebrospinal fluid or CSF all the time. This fluid helps protect the…
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Orthopedics and Spina Bifida
September 2024 Many people born with Spina Bifida have problems with their bones, joints, or muscles at some point in their life. These problems can be…
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Hypertension and Spina Bifida
January 2024 What is hypertension? Hypertension, also called high blood pressure, is a medical condition in which the force of a person’s blood flowing through their…
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Obesity among Persons with Spina bifida
September 2024
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Depression and Anxiety
November 2024 Is it normal to feel sad sometimes? Yes. Everyone feels sad or worried once in a while. These feelings usually come and go and…
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