2020 Hill Meetings

Every winter and spring, SBA heads to Capitol Hill to advocate on behalf of the Spina Bifida community. Nobody can advocate harder for you or your child outside of yourself. We strive to be the second-best voice to fight and serve you. You can make a true difference in our advocacy efforts from home. If we’ve met with one of your Members of Congress, email them using the email provided below. The people we meet with are legislative aids that represent the Members of Congress. Introduce yourself, let them know that you’re a friend of the Spina Bifida Association, who they’ve recently met with, and inform them that you are one of their constituents living with Spina Bifida. Tell them about your journey, what health issues or wins you’ve had, and that the funding for the National Spina Bifida Patient Registry at the CDC is shaping the future of healthcare, wellness, and treatment for all those impacted by Spina Bifida.


Congresswoman Martha Roby. Email Luke McKnight.


Congresswoman Lucille Roybal-Allard .   Email Debbie Jessup.


Senator Marco Rubio


Senator Dick Durbin 


Congressman Andy Harris, M.D. Email Molly Brimmer.

Senator Van Hollen


Congressman John Moolenar. Email Jayson Schimmenti.


Senator Roy Blunt

New Jersey 

Congressman Chris Smith. Email Kelsey Griswold.

New York

Congresswoman Nita Lowey. Email Dana Acton or Elizabeth Gauthier.


Congressman Kevin Hern. Email Chrissy Liotta.


Congresswoman Jamie Herrera Beutler

West Virginia

Senator Shelley Moore Capito


Congressman Mark Pocan. Email Sydney Scott.

Advocate with us for the Virtual Teal on the Hill

This immersive online experience featuring a series of live training and information sessions to guide you on how to be the best virtual advocate!