The Guidelines were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.

The Guidelines are as follows, grouped by topic. Please click the link of Guideline you wish to view.

System of Care

Psychosocial Context for Self-Management

Neuropsychology and Neurosurgery

Mobility, Orthopedics, and Physical Activity

Urology and Sexual Health

Specific Health Issues



Listen as Spina Bifida Association Assistant Medical Director, Dr. Brad Dicianno, talks about the release of the fourth edition of Guidelines for the Care of People with Spina Bifida.