Research Opportunities

The Spina Bifida Association advocates for research to improve the lives of people living with Spina Bifida. As more research advances our understanding of Spina Bifida, we are committed to providing you with the tools you need to continuously build upon your work. 

SBA Requirements to Participate in Research and Recruit Study Participants

  1. IRB approval.
  2. All informed consent materials.
  3. Abstract / detailed description of study.
  4. Actual copy of survey.
  5. All advertisement materials to be used for recruitment.
  6. Agreement to share study outcomes with SBA at completion of study.

If you are interested in partnering with SBA, please email Judy Thibadeau at