For Researchers

The Spina Bifida Association advocates for research to improve the lives of people living with Spina Bifida. As more research advances our understanding of Spina Bifida, we are committed to providing you with the tools you need to continuously build upon your work. 
SBA has the following requirements to help researchers promote their studies through our communications channels:
  1. IRB approval.
  2. All informed consent materials.
  3. Abstract / detailed description of study.
  4. Actual copy of survey.
  5. All advertisement materials to be used for recruitment.
  6. Agreement to share study outcomes with SBA at completion of study.

If you are interested in partnering with SBA, please email Judy Thibadeau at jthibadeau@sbaa.org.