Research Opportunities

Individuals born with Spina Bifida  today are expected to live into adulthood and more than half of the 166,000 people living with Spina Bifida in the United States are adults. Yet, little is known about the interventions that are most effective and impactful in the lives of this population, of both adults, parents, and their children. Integral to the mission of the Spina Bifida Association is pursuit of quality,  comprehensive, community-centered research, and data. Whether you are a researcher who would like SBA support,  a person living with Spina Bifida, or a caregiver of someone with Spina Bifida we would like to facilitate your participation and engagement in  research initiatives.