Advocate Online!

Tell Congress to Increase Funding for the National Spina Bifida Program

THE ISSUE: The National Center for Birth Defects and Developmental Disabilities (NCBDD) at the CDC houses the National Spina Bifida Program. The National Spina Bifida Program is the only place in the federal government exclusively dedicated to studying this chronic, complex condition affecting children and adults through its National Spina Bifida Patient Registry (NSBPR), the Spina Bifida Collaborative Care Network, and specific research projects.

THE ASK: Ask Members of Congress to support funding.

Tell Congress to Support the Work Without Worry Act!

THE ISSUE: If an adult has a severe medical condition that began before age 22, they may be eligible for a Social Security benefit called the Disabled Adult Child (DAC) benefit. Their benefits are based on their parent’s Social Security earnings, in the same way that benefits of a child under age 18 would be. However, under current law some of these young adults fear that if they try to work, they will lose future DAC benefits, which are often higher than any benefit they may qualify on their own. This fear inhibits the ability of Americans with disabilities to explore their ability to work as they transition to adult life. 

THE ASK: Support the Work Without Worry Act. This bipartisan bill ensures Americans with disabilities will not lose Social Security benefits for working. The Work Without Worry Act promotes financial security by ensuring that any earnings from work – no matter how much – will not prevent an individual from receiving a Social Security DAC benefit from their parent’s work history if they have an eligible medical condition that began before age 22.