Life with Spina Bifida

Every person affected by Spina Bifida experiences their own journey. Spina Bifida is often referred to as the “snowflake” condition as no two people are affected the same way.

Whether you are caring for a child with Spina Bifida or you are an adult with Spina Bifida, it is important that you learn as much as possible about your individual situation.


Connect with the Spina Bifida community

We have Chapters across the country, social media support groups, events and other activities


Stories from the Spina Bifida community


Colleen Payne: What if he needs a wheelchair?

What if he needs a wheelchair?

Coleen from Kentucky

Upcoming Events

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    Nov 18, 2018Washington, DC

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    Example Event Post

    Nov 24, 2018Arlington, VA

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    Example Event Post Two

    Nov 24, 2018Atlanta, GA