Life with Spina Bifida

Every person affected by Spina Bifida experiences their own journey. Spina Bifida is often referred to as the “snowflake” condition as no two people are affected the same way.

Whether you are caring for a child with Spina Bifida or you are an adult with Spina Bifida, it is important that you learn as much as possible about your individual situation.

 

Connect with the Spina Bifida community

We have Chapters across the country, social media support groups, events and other activities

Connect

Stories from the Spina Bifida community

story

Colleen Payne: What if he needs a wheelchair?

What if he needs a wheelchair?

Coleen from Kentucky

What's new at SBA?

  • news

    Heavyweight Champion Boxing Event to Benefit the Spina Bifida Association

  • news

    Spina Bifida Association Announces Clinic Care Partner Program

  • blog

    The Grand Canyon Adventure: A Challenge with Rewarding Results