Spina Bifida Association

Building a Better and Brighter Future for all Those Impacted by Spina Bifida.

Make your impact.

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.

What We Do

Education

We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida.

Advocacy

We advocate for funding of Spina Bifida Programs at the CDC, disability rights, and affordable accessible health care.

Research

Guidelines for the Care of People with Spina Bifida provide evidence-based guidance on caring for Spina Bifida.

Support

Our National Resource Center provides referrals and resources, responding to inquires in Spanish and English.

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Preparing for the Future: Empowering Independence During Transitional Care
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TAI: Helping children, teens and their families live with a neurogenic bowel disorder
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Spina Bifida Association to Introduce Lifespan Bowel Management Protocol

We are dedicated to serving and supporting every person impacted by Spina Bifida

Have a question? Need support? We're here for you. Contact our National Resource Center.

Spina Bifida Association