Blog PostsDec 12, 2023

Community Information Session: Adult Health and Aging Well with Spina Bifida

There are many more adults living with Spina Bifida than ever before. Yet there is very little information on adult health and aging with Spina Bifida.

This Community Information Session presented the common health challenges that accompany aging with Spina Bifida and information for adults with Spina Bifida and their care partners on taking a proactive and preventative approach to health care management. Topics included:

  • Urinary tract infections (UTIs)
  • Appropriate use of antibiotics
  • Pneumonia
  • Wounds
  • Nutrition
  • Lymphedema
  • Sepsis
  • Shunt malfunction
  • Sleep apnea
  • Back pain
  • Syrinx
  • Scoliosis
  • Spina Bifida Occulta
  • Shoulder and wrist problems
  • Hips and joints
  • Osteoporosis
  • and more.


  • Sara Struwe, MPA, President and CEO
  • Tim Brei, MD, Medical Director
  • Brad DiCianno, MD, Assoc. Medical Director

To view the recording, click here.

Links to resources associated with presentation:

Guidelines for the Care of People with Spina Bifida.

Did You Look? Skin Integrity

Signs of Shunt Malfunction

Hydrocephalus and Shunts

Sleep Apnea

Spina Bifida Occulta

About the Spina Bifida Association
The Spina Bifida Association (SBA), founded in 1973, now in its 50th year SBA is the only national voluntary health agency dedicated to Spina Bifida. The mission is to build a better and brighter future for all those impacted by Spina Bifida. Fueled by dedicated healthcare providers, parents, adults, caregivers, and others, we are committed to helping people live longer, healthier lives through Research, Education & Support, Clinical Care, Network Building, and Advocacy.