At the Spina Bifida Association (SBA), we know how essential ostomy and urological supplies are to daily life, independence, and dignity for people living with Spina Bifida. These supplies are not optional — they are lifelines that support health, prevent complications, and allow individuals to thrive in their communities.

That’s why we took action.

Taking a Stand for Our Community

Yesterday, SBA joined 44 other patient-disability organizations from across the country in signing a Congressional letter opposing the proposed expansion of the DMEPOS Competitive Bidding Program to include ostomy and urological supplies.

If implemented, this proposal could severely limit access to the specialized supplies that many in our community rely on every single day. Competitive bidding may lower costs for certain medical equipment, but it can also reduce the number of suppliers and create dangerous gaps in availability for people with complex medical needs.

Amplifying Your Voices in Congress

This letter was delivered to Congressional leadership and urges them to work with the Trump Administration to ensure this proposal does not become final policy.

We also circulated the letter to every Member of the House and Senate to make sure your needs — and your voices — are heard on Capitol Hill.

Gratitude for Our Allies

We are deeply grateful to our fellow organizations, advocates, and community members who joined us in this united stand. Your support sends a powerful message: access to essential supplies is not negotiable.

Together, we are stronger — and together, we are making sure policymakers understand what’s at stake for our community.

What Comes Next

SBA will continue to monitor this issue closely and advocate for policies that protect access to the medical supplies and services our community depends on.

We’ll keep you informed about next steps and any opportunities to take action.

Thank you for raising your voices alongside ours. Advocacy works — and this is proof.

Read the full letter here>>
Learn more about how SBA advocates for access to care>>