Virtual Education Days

Interested in sponsoring one or more virtual 2022 or 2023 Spina Bifida Education Days? Click here.

October 1, 2022, 12 pm ET – EDUCATION DAY FOR Adults

This virtual event is tailored to adults with Spina Bifida. We will address medical, educational, and social topics that are important to adults with Spina Bifida including:

  • Self-advocacy and using the Guidelines for the Care of People with Spina Bifida mobile application and Symptom Tracker
  • Bowel Management
  • Men’s Health
  • Sexuality and Women’s Health
  • Understanding Executive Functioning
  • Wellness

Each session will include time for live questions and answers with the speakers and panelists. This is an opportunity to engage with health care professionals who are treating adults with Spina Bifida.

To register and for more information, click here.


  • Albany Medical Center Spina Bifida Clinic, NY
  • Upstate Adult Spina Bifida Clinic, Syracuse, NY
  • Westchester Medical Center Health Network, NY
  • Spina Bifida Association of New York State
  • Spina Bifida Association


25 de Junio / June 25

Incorpore la Actividad Física en su Rutina Diaria para Aumentar su Bienestar, Felicidad, y Calidad de Vida (Include Physical Activity in Your Daily Routine)

16 de Julio/ July 16

Por qué es importante, y cómo fomentar, el autocuidado y la independencia en los niños menores de 18 años (Encourage Children <18 years to Learn Self-Care and Independence)

Cómo la salud mental influye en el comportamiento, bienestar, e independencia de los niños y jóvenes con espina bífida (How Mental Health Affects the Behavior, Well-Being, and Independence of Children and Youth)

April 30, 2022: Education Day for parents of teens and young adults

March 26, 2022: Education Day for parents of children ages 0-12